The Face of Strength and Determination

I have ridden in the MS150 City to Shore bicycle tour to benefit multiple sclerosis for close to 20 years. This is a two day, 150-mile charity tour from Cherry Hill to Ocean City New Jersey and is always a great time. It is by far one of my favorite events to do each year.

One of the appeals of the MS150 is the fact that this is a very “friendly” ride in that riders of all walks and of all ages and athletic abilities are welcome and encouraged to participate. It is a great training ride for some, and an epic happening for others. The event attracts everyone from weekend warriors and serious athletes, to first timers and even entire families on every type of bicycle imaginable.

The MS150 also has a very unique and special feature. One that is so special that other riders flock to get a glimpse or snap a picture just to prove to others that this phenomenon actually exists.

Rather than me even attempt to do this amazing individual’s story any justice, click HERE for the full scoop. You too will be touched.

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Runners Aim to Raise $60k at Philadelphia Marathon

“I Run to Stop MS” Team Will Help Create a World Free of Multiple Sclerosis

Two years ago, Paul Goldstone ran the New York Marathon in honor of his father, Robert, and 11,000 other people living with multiple sclerosis in the Greater Delaware Valley.

Today, the Bryn Mawr entrepreneur is coordinating more than 60 runners and a dizzying number of races as the local organizer of “I Run to Stop MS,” a fundraiser for the National MS Society.

Goldstone will run the Philadelphia Marathon on November 22 with 34 teammates as part of the Karma Striders team. Another 26 runners are volunteering at the event or have competed in other races as part of the team.

Their goal is to raise $60,000 to fund research, programs and services for local people living with MS.

“The National MS Society has a great tradition of support, and MS still needs more awareness and more research,” Goldstone said. “A lot more people are affected by MS than even realize it.”

With $35,000 still to go, the Karma Striders will hold a fundraiser at North Bowl in Northern Liberties on Thursday, November 12, starting at 5:30 p.m. Featuring one-of-a-kind retro décor and ambience, North Bowl is a truly special venue, Goldstone said.

“In addition to state-of-the-art stereo and bowling technology and a fun menu, North Bowl shares Karma Striders’ common passion to give back to the community,” Goldstone said. “Everybody in the world’s invited to our bash.”

In 2008, Goldstone started recruiting others to run the Philadelphia Marathon with him. Last year, he had 34 teammates. This year, there are 62. The diverse group of runners includes people from across the nation. Participants are young and old, of all ethnicities, professions and experience levels. Some are running their first marathons and others are elite athletes competing in races such as the Ironman Lake Placid triathlon.

While Goldstone had personal connections with some of his early recruits, many of the more recent additions are learning about the team on the Internet or at other races. (A team roster is provided below.)

Alison Felty of West Chester found “I Run to Stop MS” on Facebook. A competitive runner in high school and college, Felty is inspired by her mother, who was diagnosed with MS in the early 1980s.

“My mother is probably the strongest person I know,” she said. “I thought this would be a great way to get me motivated enough to actually complete my goal of running a marathon while helping to raise money for a cause that is close to my heart.”

Note to editors: Please visit http://main.nationalMSsociety.org/irun or the “I Run to Stop MS” tent at the Philadelphia Marathon to meet team members and learn more about MS.

Karma Striders Team Roster
Ryan Anderson, Philadelphia, PA
John Ballentine, Philadelphia, PA
Jeffrey Bauer, Philadelphia, PA
Patia Braithwaite, Massapequa, NY
Jacqueline Brown, Stone Ridge, NY
Laura Brown, Philadelphia, PA
Michael Courtney, Alexandria, VA
Denis Darragh, Orefield, PA
Coleen Dever, Newtown Square, PA
Roger Dickerman, Philadelphia, PA
Lindsay Docherty, Narberth, PA
Lucille East, Mcguire AFB, NJ
Alison Felty, West Chester, PA
Marta Gancarz, Woodlynne, NJ
Melanie Glenn, Philadelphia, PA
Paul Goldstone, Bryn Mawr, PA
Amy Haavik-MacKinnon, Philadelphia, PA
Diane Hauser, Malvern, PA
Velda Johnson, Tampa, FL
Lafrenchie Jones, Philadelphia, PA
Melissa Klein, Havertown, PA
Ross MacKinnon, Philadelphia, PA
Erich Maerz, Chalfont, PA
Kevin Maguire, Philadelphia, PA
Sheri Makransky, Las Vegas, NV
Lisa Malseed, Bryn Mawr, PA
Aida Mancini, Philadelphia, PA
JJ Marcano, Ambler, PA
Michele McVeigh, Philadelphia, PA
Lisa Miller, Morgantown, PA
Ken Modica, North Wales, PA
Heather Mozzone, Chesterbrook, PA
Courtney Murphy, Bensalem, PA
Thomas Nace, Harleysville, PA
Robert Nelson, Philadelphia, PA
Emily Olson, Philadelphia, PA
Jennifer Owens, Bloomsburg, PA
Ian Pawasarat, Holtwood, PA
Marissa Pellegrino, Philadelphia PA
Nancy Perrino, Monroeville, NJ
Ralph Perrino, Monroeville, NJ
Matthew Plona, Norristown, PA
Jacquelyn Powers, Philadelphia, PA
Adam Prendergast, Philadelphia, PA
Sarah Race, Radnor, PA
Benjamen Ramos, Cherry Hill, NJ
John Robson, Philadelphia, PA
Elizabeth Ryland, Lansdale, PA
Pejvak Soltany, Philadelphia, PA
Erin Trumbower, Harrisburg, PA

About MS

Every hour in the United States, someone is newly diagnosed with MS, an unpredictable, often disabling disease of the central nervous system. Symptoms range from numbness and tingling to blindness and paralysis.

About the National MS Society

MS stops people from moving. The National MS Society exists to make sure it doesn’t. We do this through our home office and 50-state network of chapters by funding more MS research and providing more services than any other volunteer-driven health organization.

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Appreciating New & Wonderful Souls

I need to first preface this post by giving the appropriate credit where credit is due. “New and Wonderful Souls” were the words used by Vicki Huber Rudawsky in an  email to me to describe her thoughts on what was a very memorable evening… I liked them… so I borrowed them.

It isn’t everyday that one has an opportunity to meet true greatness face to face. It isn’t everyday that one has the chance to sit and listen to an individual who helped change the entire blueprint of women’s athletics, and who blazed a trail for millions of young women to follow. It isn’t everyday that an icon such as Kathrine Switzer passes through Wilmington Delaware to speak on sports, on believing in yourself, and on how one episode in 1967 facilitated change that will resonate for generations to come. Girls Inc, YMCA of Delaware, Girls on the Run, and Piranha Sports proudly presented Ms. Switzer to a room full of men and women of all ages at the Central YMCA in Wilmington DE on October 22nd as she told her story.

In 1967 Kathrine was journalism student at Syracuse University with a passion for running. Such a passion, that Switzer proclaimed to all who would listen that she had plans to run the Boston Marathon. The Boston Marathon was second in prestige only to the Olympic games and was an event in which only men could compete. Or so most people thought. Studying the marathon rules ever so diligently, Switzer found no documented proof that a woman was prohibited from entering the Boston classic so she took the bold leap and registered for the race under the name of “K.V. Switzer”. After all, back then, everyone feared that women were far to weak and fragile to engage in something as physically demanding as the marathon. And were often told that women should not run any serious distance because…..”they would get huge legs, grow hair on their chest, and be unable to ever have children”.

Kathrine Switzer showed up on race day with her boyfriend Tom, close friend and mentor Arnie Briggs, and a couple of Syracuse cross country runner friends. What happened next forever changed the framework for women’s athletics. Four miles into the 1967 Boston Marathon, race director Jock Semple pulled up alongside Switzer screaming and demanding that she leave the course, while attempting to physically rip off her race number and remove her. With the help of her entourage, Kathrine held her ground and refused to allow herself to be bullied out of the race for being a female.

ks_bos_collage_600Switzer went on to finish that race in 4:20. And 34 other marathons. Including winning New York City in 1974 and posting a marathon PR in 1975 of 2:51. But that all still doesn’t scratch the surface of the impact that this woman had on the sport and on the world. Switzer went on to create additional opportunities by championing women’s events all over the world. She became a voice on the road, in front of the cameras, and in the broadcast booth. She gave a face to the words “belief” and “possibility” and she annihilated the gender barrier.

Following Switzer’s talk at the Central Y, several of us were invited to join her for dinner at a nearby Wilmington restaurant. As we wined, dined, and chatted about – everything under the sun, I glanced around the room and saw a table full of women who are all carrying Swizter’s mission and message full steam ahead through the programs of the evening’s sponsors. Seated to my left was Villanova running legend and two-time Olympian Vicki Huber Rudawsky. Seated to my ride, was Kathrine Switzer. I shook my head at the profound concept that if “the Boston incident” had played out differently for the woman on my right, the woman on my left would have had an entirely different path in life. As so many women athletes would have.

It really was an evening to appreciate new friendships and “new and wonderful souls”. And one that I was glad to be a part of.

For the complete story on Kathrine, please visit Marathon Woman.

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Phillies' Pitching Ace Cliff Lee Supports The Leukemia & Lymphoma Society

The Fightin’ Phils are back in the Word Series for a second consecutive season!  A day after the clinching victory, Phillies’ ace pitcher Cliff Lee unveiled the brand new Phillies “Unbe-lee-vable” t-shirt.  The phrase captures the essence of the team’s run to become the 2009 World Series champions! 

Modell’s also announced that a portion of the proceeds from each “Unbe-lee-vable ” shirt sold will be donated to Cliff’s charity of choice, The Leukemia & Lymphoma Society (LLS), to help fund blood cancer research, education and patient services. 

The Unbe-lee-vable shirt is available for sale only in Modell’s Sporting Goods stores only in the Philly Metro area.  (Shirts will be $19.99 for adults and $15.99 for kids.)

For more information, please call the Eastern Pennsylvania Chapter at 610-238-0360.

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Quote for HOPE

Get a free quote by November 30th and Liberty Mutual will donate $5 to Susan G. Komen for a cure.

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The Comeback Kid

On July 6, 2004, eighteen-year-old Brian Boyle was driving home from swim practice. He lived with his parents in Welcome, Maryland, a small town near the Eastern Shore. The roads are narrow and windy in this rural part of the state. At one intersection, a speeding dump truck plowed into his Camaro, totaling the vehicle and practically costing Boyle his life. He suffered massive internal damage and lost 60 percent of his blood. A helicopter whisked him to a local hospital with a state-of-the-art trauma unit. Doctors had to jumpstart his heart eight separate times during surgery. To lessen his pain, the medical staff also put him in a chemical-induced coma which lasted two months.

With his mother and father sitting vigil at his bedside, the prognosis looked grim for the former bodybuilder and competitive swimmer who would end up losing 100 pounds. Had he suffered any  brain damage? Would he ever talk or walk again?  Would he always remain in a lifeless vegetative state?  Imprisoned and with no memory of the accident,  he was  unable to speak, blink, or signal to  anyone even though he could hear the doctors, nurses, and his parents talking in his hospital room.

Here’s Brian recollection from this period when he found himself inexplicably trapped inside the coma, medically known as being in a “locked-in” state:

It was a little over a month and a half when I started to regain consciousness to the point that I knew what my surroundings were and I wasn’t hallucinating. But this was before I started talking. Once they put me in a comatose state,  the doctors didn’t know that when I woke up  if I would be mentally okay; if I would be able to function; if I would be able to walk or sit up or even do anything without having to be helped.  I was pretty much going to be a vegetable, and that’s what they were predicting. I remember one day this doctor  talking to my parents in my room about me having to go to a nursing home, because that’s where I was going to be spending the   rest of my life, and I remember hearing that and being totally conscious of what he was saying; I didn’t like the sound of that and realized I don’t want to spend the rest of my life in a hospital bed in a nursing home. I’m  mentally here, but nobody knows that because I can’t communicate. I’m paralyzed. I can’t move my fingers. I can’t blink. I can’t do anything but lie here and just suffer. I was trapped. I was in a mental prison. I could not get out or tell anybody that I was okay. I was just hoping that they weren’t going to pull the plug on me because I didn’t know what the hell was going on. I couldn’t do anything. I screamed from the inside. I tried to do everything I could. I really tried hard, but it just wasn’t working.

Some days I would sleep. I would be in and out of consciousness.  I was once awake for about a week; perhaps I don’t know if I were actually awake, but my eyes were open for the whole time, so I was sleeping while my eyes were open. It was horrible. Just horrible stuff. I was so weak that I couldn’t even close my eyelids. The nurses would have to put some kind of saline solution or Vaseline ointment on top of my eyelids.

Miraculously, however, Brian managed to unlock himself from this hellish solitary confinement, of reaching the other side of the coma barrier, and gratefully rejoined  the land of the living. His reentry  began with a faint smile, the weak moving of an  index finger, of  saying a few words.

Within several weeks, he was making rapid  progress, undergoing daily hours of rehab where he had to relearn such basics as eating, speaking, showering, using his arms, and walking, But  he also set out to achieve what seemed like two impossible physical challenges: joining the swim team at St. Mary’s College, and competing in the Hawaii Ironman triathlon in Kona-Kailua. Given  the severe extent of his injuries, this desire appeared absurd,  His doctors were concerned, if not alarmed, by his decision. He had lost his spleen and his lungs were still badly damaged. Yet he accomplished both goals, though it took many months of hard work and incredible willpower despite setbacks, to retrain his wrecked  body to become what it  had once been,

On October 13, 2007, Boyle crossed the Ironman finish line in 14 hours and 42 minutes– 30 months after the catastrophic accident which had actually pushed his heart clear across his chest. Not only had Boyle cheated death, but he had triumphed in one of the world’s toughest endurance events while being shadowed throughout the long, hot day by an NBC television crew.

Following his amazing comeback in Kona, Boyle continued to train hard as a multisport athlete and personal trainer. He’s now a regular competitor on the triathlon circuit– and plans to compete again in the 2009 Ironman. He’s also been very much in the media, with newspapers, magazines, television  and radio shows   interested in his amazing story.  It’s a saga of limitless inspiration, personal heroism, physical courage, and of course, complemented by the loving support of family and friends. Many were rooting for Brian’s recovery, and providentially, he didn’t disappoint. them.   The American Red Cross now seeks him out to speak at athletic events. Men’s Health magazine, in its November 2008 issue,  named Brian one of its “20 Heroes of Health and Fitness,” joining sports  legends Tiger Woods and Lance Armstrong.

Brian’s story of how he went from coma to Kona is one of a kind, and  it is safe to say that this brave young man has no intention of ever slowing down.

Iron Heart is now available in major bookstores across the nation as well as online.

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TEAM IN TRAINING Survivor Bio

I was recently asked to update my bio for our new TNT season. I figured it was something that might be worthy of sharing with the masses…

racingforareason4In late 2005, I was starting to have some difficulty swallowing and after ignoring the problem for several months, I finally decided to do something about the situation and made a few appointments. Every emotion ran through me when I learned that a possible tonsillectomy had somehow become a leukemia diagnosis. I didn’t think people like me got “sick”. I had no other signs or symptoms and was looking ahead to a new year of triathlon racing when I was hit with the news.

My doctor advised that I should begin treatment right away. So a month later I began the first of what would be four week long rounds of chemotherapy followed by two years of semiannual preventative treatments. I am one of the lucky ones. My doctor almost immediately referred to me as a “responder”. I hit complete remission between my second and third rounds of treatment which is where I remain and intend to remain.

I made two very important decisions immediately following my diagnosis.  The first was to continue to train through and around my treatments and I did so mainly to try to retain some kind of control in a relatively uncontrollable situation. On days that I felt ok, I worked out. On days that I felt strong, I ran home from my chemo treatments. And I did so to also send a message to myself, my loved ones, and my cancer that I had every intention of winning this battle.

chemo_jpg_w300h227The second important decision that I made came only a couple of days after my diagnosis. I reached out to TNT triathlon coach Todd Wiley, told him of my news, and immediately signed on as an assistant coach. By far, this was one of the best and most rewarding decisions that I have ever made. I now have the opportunity to work with so many eager and enthusiastic TNTers as I share my knowledge of a sport that I have been so passionate about for over 20 years. And in return, I take comfort in knowing that these folks are raising funds and awareness for my blood cancer. It’s a partnership that simply doesn’t get any better.

The Leukemia & Lymphoma’s TEAM IN TRAINING program is unparalleled for a number of reasons. We have seen firsthand success stories of how the dollars raised through the program have funded significant developments in research and saved lives. But TNT is more than that. It’s a program that builds relationships and creates lasting memories for each and every participant. It’s a program that builds confidence and self esteem along with an incredible sense of self worth in knowing that by joining “the team”, you are making a difference in the lives of so many – including your own.

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Today’s Great Reminder

I received the following quote today in an email from Ethan Zohn:

“Sport has the power to change the world, the power to inspire, the power to unite people in a way that little else can.  It speaks to people in a language they understand. The heroes sport creates are examples of this power. They are valiant, not only on the playing field but also in the community, spreading hope and inspiration to the world.”

- Nelson Mandela

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Make a Difference and Have FUN

Interested in giving a triathlon or marathon a try? Check out the upcoming area TEAM IN TRAINING informational meetings and learn how you can have the experience of a lifetime while saving lives and making a difference in the world. We are currently recruiting for the following events:

  • Marathon de Paris
  • Country Music Marathon & 1/2 Marathon
  • St. Anthony’s Triathlon
  • The New Jersey Marathon & Long Branch Half Marathon

Visit TEAM IN TRAINING for more!

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The Message

So, in my humble attempt to try to motivate or inspire Maryland’s men’s lacrosse team as their honorary team captain in yesterday’s HEADstrong lacrosse tournament, I urged them to walk away with three things as a result of having met me…

First, I reminded them that I am living proof that in spite of doing all of the right things; in spite of eating right, exercising, and always trying to make the right choices; crap happens. And when it does, the first choice you have is to make is whether to sit on the couch and feel sorry for yourself, asking all of the “why me” questions….. or address the problem and move on.

Point number two… treatment can work. For all of the terrible stories you hear of death and loss, there are even more examples of survivorship. I drove the point home that we are winning this war and that all of the research and advancements that have been made in cancer research is working. My doctor called me a “responder” early on in my treatment because I reacted so well to what many people refer to as poison – chemotherapy.

And lastly, I reminded them that they were there to play a sport that they loved. And the beauty of the weekend was that they were able to play a game, while raising huge dollars for a very worthy blood cancer cause. I pleaded with them to never lose track of that concept. I told them that they had all been given a special gift in that they were being given the chance to do something that they loved, while making a difference in the lives of others. I told them that I hoped that whatever their passions end up being 5, 10, or 50 years from now, that they will always try to find a way to unite their passions with ways to give back – some how, some way.

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"Be the change you wish to see in the world " - Gandhi
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