Author Archives: Steve

Dear Extended Team in Training Family

I wanted to let you all know that after a fair amount of thought and soul searching, I’ve made the decision to step down as the Eastern Pennsylvania triathlon coach. Over the last 12 and a half years I’ve had the honor and privilege of coaching some of the most amazing people on this planet. [...]
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Dance with Me

Quick update for those keeping score at home. Today is day 13 on my new daily chemo ibrutinib and I continue to see amazing results with virtually no side effects. I also had my 2 week oncolodoc check in today and he was equally pleased. My blood work is responding exactly as it’s supposed to. [...]
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OCNJ 10 Miler & Ibrutinib

My first full week with my new oral chemo had me feeling good enough to jump into the Ocean City New Jersey 10 miler. And I felt beyond great. It was just a perfect day with much to be thankful for. Especially my wife Mary Grace for always being ….. everything. I could never do what [...]
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Hope, Belief, Trust, and Science

For over 12 years I’ve lived with chronic lymphocytic leukemia. There  is no cure for this chronic blood cancer today. When things go well, you strive to manage the disease and treat it with conventional therapies when symptoms become problematic. Remission is the perpetual goal. And for over 12 years, we’ve done just that. With [...]
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Day 5 with Ibrutinib

Well, I am most ecstatic to give this update on what is now day 5 of my new chemo drug, Ibrutinib. While proven to be quite effective, there are a number of possible side effects associated with this drug. The keyword for me so far is “possible” because I have felt little to zero side [...]
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A New Chapter

For 12 years I’ve managed my CLL by reacting to flare ups and relapses with periodic chemo treatments using drugs like Bendeka, Fludara, and Rituxan, and megadoses of steroids like Decadron, Prednidone. That accounted for 54 rounds of toxic chemo and God only knows how many steroid cycles over those 12 years. I experienced another flare [...]
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September Updates!

Many apologies for dropping the ball on blog updates. I have been extremely active on social media and if you’ve been following along you know that a lot has been happening in Camp RemissionMan. I promise to get back in the habit of posting ad updating to all platforms going forward! There is so much [...]
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Thanks Dad

We had an amazing Father’s Day picnic yesterday at your park with everything from badminton to kickball to whiffle ball to Pica’s pizza. Our family is growing. You would be proud. Really proud. I sure am and the older I get the more I realize that there aren’t too many differences between you and I. [...]
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More Flyers Charity Classic News

I wanted to share this nice article that was just posted on the Flyers Alumni Association site(s) regarding the Charity Classic and our Chico’s  Vibe team Band on the Run! Check it out HERE! Also, our team fundraising page can be found HERE!
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Chico’s Vibe & Flyers Charity Classic

Come join your Chico’s Vibe friends for an unforgettable day of fun and giving back. The Toyota Flyers Charity Classic is a city-wide event incorporating a 5k walk/run through the Philadelphia Navy Yard, a 10-mile family bike ride through the Navy Yard and FDR Park, and two bike rides – a 50K and a 100K. In addition [...]
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