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Tag Archives: leukemia & lymphoma society
Three Ways to Help
For over 30 years I’ve been tying together endurance sports and charitable giving. 2019 is affording me several opportunities to do more of the same. The links below will take you to the fundraising events I’m currently registered for and the corresponding charities for each event. Any help that you can give would be immensely [...]
Posted in cancer, charity, health & fitness, leukemia & lymphoma society, survivor Also tagged autism speaks, big climb philly, legacy of hope, love run, tcs nyc marathon Comments closed
Dear Extended Team in Training Family
I wanted to let you all know that after a fair amount of thought and soul searching, I’ve made the decision to step down as the Eastern Pennsylvania triathlon coach. Over the last 12 and a half years I’ve had the honor and privilege of coaching some of the most amazing people on this planet. [...]
Dance with Me
Quick update for those keeping score at home. Today is day 13 on my new daily chemo ibrutinib and I continue to see amazing results with virtually no side effects. I also had my 2 week oncolodoc check in today and he was equally pleased. My blood work is responding exactly as it’s supposed to. [...]
Posted in cancer, health & fitness Also tagged blood cancer, chronic lymphocytic leukemia, cll, janssen pharmaceuticals, johnson & johnson, Lls, pharmacyclics, relentless, remission, survivor Comments closed
Student of the Year Grand Finale Gala Mission Speaker
I’m both honored and excited to have been asked to speak at this year’s Leukemia & Lymphoma Society Student of the Year Grand Finale Gala. Many of you know my story and my ties to this great organization. Looking forward to a terrific evening.
Details HERE
Posted in leukemia & lymphoma society, motivation Also tagged Lls, student of the year Comments closed
The Color of My Shirt
So, I’ll share this….
One of the hassles about living with a chronic form of leukemia is that it’s always there. It may lie quietly in remission showing no clinical evidence of being there…. but it is there. You may feel strong and fit and like your old pre-cancerous self, but the monster is in there…lurking.
This [...]
Posted in cancer, motivation Also tagged chronic lymphocytic leukemia, team in training Comments closed
Happy Blood Cancer Awareness Month!
September is blood cancer awareness month. Blood cancers are cancers of the blood, bone marrow or lymph nodes that affect normal blood cell production or function.
Today, nearly 1.3 million people in the United States are living with, or are in remission from, leukemia, lymphoma or myeloma.
Blood cancer can affect anyone, at any time. There is [...]
FDA Approves Immunotherapy for Blood Cancer Patients
Today heralds a new era in cancer treatment with the U.S. Food and Drug Administration (FDA) approval of a new, cutting-edge gene therapy that reprograms a patient’s immune system to find and kill cancer cells. This highly personalized therapy known as Kymriah (previously CTL019 or tisagenlecleucel-T) signifies the promise of CAR (chimeric antigen receptor) [...]
Posted in cancer, motivation Also tagged CAR-T, carl june, immunotherapy, Lls, upenn Comments closed
Wide Open Doors
For quite some time now I have stood by the statement that my leukemia diagnosis has opened more doors than it has closed and created more opportunities than it has taken away. I truly believe that but thought it would be even more enlightening to write down just what some of these opportunities have been. [...]
Posted in cancer, leukemia & lymphoma society, motivation Also tagged chronic lymphocytic leukemia, comcast sportsnet, Dave Scott, ethan zohn, lauren hart, nyc marathon, philadelphia eagles, scott tinley, team in training, two oceans ultra marathon, vicki huber rudawsky Comments closed
Man & Woman of the Year Video