Tag Archives: leukemia & lymphoma society

Dear Extended Team in Training Family

I wanted to let you all know that after a fair amount of thought and soul searching, I’ve made the decision to step down as the Eastern Pennsylvania triathlon coach. Over the last 12 and a half years I’ve had the honor and privilege of coaching some of the most amazing people on this planet. [...]
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Dance with Me

Quick update for those keeping score at home. Today is day 13 on my new daily chemo ibrutinib and I continue to see amazing results with virtually no side effects. I also had my 2 week oncolodoc check in today and he was equally pleased. My blood work is responding exactly as it’s supposed to. [...]
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Students of the Year Messages

Last week I had the honor of being the mission speaker at the Leukemia & Lymphoma Society’s Students of the Year Grand Finale in Philadelphia. It was an amazing event raising over $200k in the fight against blood cancers. Fox 29 and Penn Medicine’s Dr. Mike Cirigliano was the evening’s emcee. My talk touched on a [...]
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Student of the Year Grand Finale Gala Mission Speaker

I’m both honored and excited to have been asked to speak at this year’s Leukemia & Lymphoma Society Student of the Year Grand Finale Gala. Many of you know my story and my ties to this great organization. Looking forward to a terrific evening. Details HERE
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The Color of My Shirt

So, I’ll share this…. One of the hassles about living with a chronic form of leukemia is that it’s always there. It may lie quietly in remission showing no clinical evidence of being there…. but it is there.  You may feel strong and fit and like your old pre-cancerous self, but the monster is in there…lurking. This [...]
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Happy Blood Cancer Awareness Month!

September is blood cancer awareness month. Blood cancers are cancers of the blood, bone marrow or lymph nodes that affect normal blood cell production or function. Today, nearly 1.3 million people in the United States are living with, or are in remission from, leukemia, lymphoma or myeloma. Blood cancer can affect anyone, at any time. There is [...]
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FDA Approves Immunotherapy for Blood Cancer Patients

Today heralds a new era in cancer treatment with the U.S. Food and Drug Administration (FDA) approval of a new, cutting-edge gene therapy that reprograms a patient’s immune system to find and kill cancer cells. This highly personalized therapy known as Kymriah (previously CTL019 or tisagenlecleucel-T) signifies the promise of CAR (chimeric antigen receptor) [...]
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Wide Open Doors

For quite some time now I have stood by the statement that my leukemia diagnosis has opened more doors than it has closed and created more opportunities than it has taken away. I truly believe that but thought it would be even more enlightening to write down just what some of these opportunities have been. [...]
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Dawn Stensland Mendte Interview

Check out this interview I recently did with my buddy Dawn Stensland Mendte. Click HERE to watch.
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De-Portation

Yesterday I was officially de-ported as my chemo chest port was no longer needed. My port was inserted on July 15th after which followed four rounds of chemo that proved very effective. I made it a point to try to remain as active as possible around treatments since I believe cancer has a tough time [...]
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