Tag Archives: leukemia & lymphoma society

Seeptember is Blood Cancer Awareness Month

During Blood Cancer Awareness Month this September, The Leukemia & Lymphoma Society is reminding everyone that while breakthrough therapies are saving lives, work still needs to be done to find cures – not someday, but today. Thanks to LLS-funded research, new safe and effective treatments, once unimaginable, are saving lives today. Cures for many patients with [...]
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The Running Lifestyle Podcast Interview

I recently did this podcast interview with Kari Gormley for The Running Lifestyle. We talk about running, triathlon, my leukemia diagnosis and treatments, family, and life. Check out Kari’s other interviews as well. Click to listen  iTunes
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Team in Training Season Wrap Up

 Below are some of my thoughts from a talk that I gave at the inspirational dinner for this year’s TriRock Philadelphia Team in Training group. Most of this content made it into the talk, some may not have. This was a small but terrific group of heroes. I, as always, was moved by their fortitude, [...]
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The Leukemia & Lymphoma Society Gives Blood Cancers a “Red Card”

White Plains, N.Y. (April 30, 2014) - The Leukemia & Lymphoma Society (LLS) announced today it will host the first-ever LLS Soccerfest on May 18 from 12-5 p.m. in the South Bronx (NYC). The event enlists the power of soccer to shine a spotlight and educate the Hispanic community on blood cancers.
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2014 Nicholas E. Colleluori Award

On March 21st 2014, I had the pleasure of introducing cancer survivor and heart transplant recipient Derek Fitzgerald and presenting him with the Nicholas E. Colleluori award for his demonstrated bravery and impact on the blood cancer community at the annual HEADSTRONG Foundation Lime Light Gala. I have known Derek on multiple levels for a couple [...]
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New Opportunities

It seems they found me through my blog and my writings about my diagnosis and now want to partner and manage media opportunities for me with Genentech. We had a great chat on the phone, I then received the below email. It just goes to show you that you never know who is listening. Read below:
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The Leukemia & Lymphoma Society Applauds FDA’s Approval of Ibrutinib for Patients with Previously Treated Chronic Lymphocytic Leukemia

CLL is second indication approved by FDA for ibrutinib; previously approved for mantle cell lymphoma patients (White Plains, NY) - February 12, 2014 – Today’s U.S. Food and Drug Administration (FDA) approval of ibrutinib to treat patients with chronic lymphocytic leukemia (CLL) is a significant advance for patients with this blood cancer.   Ibrutinib received FDA approval in [...]
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TNT Talk at the 2013 Philadelphia Marathon Dinner

My perspective on cancer was always that it was something that happened to others. The sick, the elderly. I grew up one of those perfectly healthy kids who played every sport that I could sink my teeth into. I attended college on a soccer scholarship. I hung on the fringe of a pro soccer career [...]
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Rituxan & Decadron CLL Treatment Take 1 (again)

As some of you may know, I was in for another round of treatment yesterday to take care of a little flare up of my chronic lymphocytic leukemia. The plan is to knock it back with a handful of single day doses of Rituxan and decadron. These treatments will be spaced a month apart and [...]
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Health Check

I just wanted to give everyone a quick health update so you all get the same message at the same time. The back story is that I had routine blood work and a CT scan done over the last couple of weeks. My blood work showed an elevated white count with a higher concentration of [...]
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