2017 TCS NYC Marathon

In November I will be back in the Big Apple to take on the New York City Marathon for the 8th time. This year I will be racing for Team RTR (Racing to Register). Racing To Register’s main goal is to increase the number of potential donors available to patients who are in need of a lifesaving bone marrow or stem cell transplant.

When I was first diagnosed with leukemia in 2006, my medical team discussed the possibility of a stem cell transplant at some point of my journey. I haven’t needed one yet but that possibility remains on the horizon.

You can help by making a modest donation of any amount HERE.

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Rothman Ambassador

The Rothman Institute liked my story and wanted to run it as part of their Ambassador program. You can check it out here:

Steve – Meniscectomy

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Cancer Support Community

And yet another contact that I made on my recent trip to Chicago was the Cancer Support Community. As the largest professionally led nonprofit network of cancer support worldwide, the Cancer Support Community (CSC) is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. CSC achieves its mission through three areas: direct service delivery, research and advocacy.

The organization includes an international network of Affiliates that offer the highest quality social and emotional support for people impacted by cancer, as well as a community of support available online and over the phone. The Research and Training Institute conducts cutting-edge psychosocial, behavioral and survivorship research. CSC furthers its focus on patient advocacy through its Cancer Policy Institute, informing public policy in Washington, D.C. and across the nation.

I’ve also added this organization to the LINKS page of my site here. You can learn more at cancersupportcommunity.org

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CLL Society

One of the connections I made while in Chicago was with the CLL Society. The CLL Society Inc. is a patient–centric, physician–curated nonprofit organization focused on patient education, support, and research. Dedicated to addressing the unmet needs of the CLL and related blood cancer communities, our goal is to develop real, recent and relevant information and to be the “go to place” for CLL patients and caregivers.

I’ve added this organization to the LINKS page of my site here. You can pay them a visit at cllsociety.org.

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Chicago Visit With Team Teva

Chicago CollageI was honored to be in ChiTown this week as part of the Bendeka Patient Advocacy Groups Advisory Board hosted by Teva Pharmaceuticals. Some of you might recall that I was treated with Teva Pharmaceutical’s drug Bendeka last year with very positive results. While in Chicago I had the opportunity to meet with some of Teva’s partners and discuss brand and treatment awareness from a patient’s perspective.

I was fortunate to have stumbled upon some excellent running trails during my brief visit. Which included the River Walkway along the Chicago River as well as the path surrounding Lake Michigan. Amazing runs and views. Including this skyline view from my hotel room.

Chicago Night SkyThis is just another opportunity to engage with the oncological community in an effort to continue to raise the bar and advance the mission. It’s another example of living above and not simply with chronic leukemia.

I also made a couple of good connections which will likely lead to some new partnerships and ventures on the horizon. Control the things you can control. Get involved.

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Team in Training Greeting from Ethan

Our Team in Training athletes received some positive energy and well wished from my buddy Ethan Zohn the other day by way of this special video message. Check it out HERE.

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New Movement Sports Magazine Article

I’ve written a new piece for Movements Sports Magazine. Please give it a read if you have a minute.

Click HERE to read.

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Knee Update

Greetings!

I am most happy to report that I finished physical therapy this week and am now FREE and CLEAR. Well, almost. I am free and clear to go full bore on the bike and weight room. I need to wait one more week before I return to running. But that’s purely precautionary. And yes…. I will be compliant! I don’t need any further follow up at this point.

Thanks Rothman Institute, Dr. Kevin Freedman, and Physical Therapist Lou Tomasetti.

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Knee Update, Big Climb, and Duathlon Nationals

First things first… The knee is progressing quite nicely. I had an outstanding physical therapy session yesterday and while I am only 11 days post op, I am responding as though I am four weeks out. I did great on the bike and elliptical then also did the leg press, box jumps, single leg bounding, and some lateral stepping with a resistance band. I need to report back to PT once next week and once the following week but am free to do everything but run. Running may take about 1-2 weeks, which I’m fine with.

That also means that I have the green light to do Big Climb Philly tomorrow. This is a charity stair climb that I registered for a while ago. Participants will “race” up 41 flights of stairs in Philly. The event benefits the Leukemia & Lymphoma Society. I’m psyched I can keep this one on the calendar.

And lastly, how is this for the ultimate FU to cancer? Last year I raced an event of some kind at the conclusion of each of my four rounds of chemo. These events included a couple of 5Ks, a duathlon, and two half marathons.  Today I found out that my 3rd place age group finish in the duathlon qualified me for a spot at the Duathlon National Championship this summer in Oregon. I’m not making the trip, but simply qualifying under those conditions is all I need. So… FU cancer.

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New Mindful Chatter Post

Come check out my Mindful Chatter piece this week for Movement Sports. 3 Keys to a Happy Season.

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