Off to the Races

I am packed, locked, and loaded for this weekend’s ChesapeakeMan Ultra Distance Triathlon in Cambridge Maryland. Or I am at least packed. Leaving tomorrow morning to help out a little with race registration and packet pick up. Not sure what my connectivity will be but I will try to shoot out some updates or Tweets if possible. At the very least, you can expect a detailed race report on what hopes to be a great weekend when I return.

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Brian Tells His Story

Brian Lott became part of the LLS family during treatment for Hodgkin lymphoma in 2004. Brian’s company, Burson-Marsteller, is a National Partner of the 2009 Light The Night Walk...

In 2004, I was 39 years old and in the middle of a professional career as a public relations consultant when, during a routine physical, a massive tumor showed up on a chest X-Ray. A biopsy and scans indicated it was Stage IIIs Hogdkin’s Lymphoma.

My wife and I were living in Germany at the time, so we relocated back to the States to seek treatment in Boston. We did extensive research on the disease, getting valuable advice and information from The Leukemia & Lymphoma Society. We needed help – we were trying to sort out moving, insurance coverage, financial assistance and housing needs all at the same time.

What we thought would be a six-month treatment plan turned into two years. The standard chemo regimen did not work on my tumors, nor did a second-line chemo. My doctors recommended high-dose chemotherapy and an autologous stem-cell transplant. That put me into remission, and to keep the cancer at bay, I had 37 radiation treatments to the affected areas. It took twelve months of physical therapy to deal with the side effects of the treatment, but I was able to return to work full-time in 2006.

Five cancer-free years later, I am considered ‘cured.’ Forty years ago, my medical options would have been extremely limited. I have always been amazed that what was once an ‘experimental’ treatment – high-dose chemo and a stem-cell transplant – is now a widely-accepted option for blood cancer, thanks to advances in medical research and the work of organizations like LLS.

And, proven treatments for blood cancers are now expanding to other kinds of cancer, bringing hope for more cures. That is why I am such a strong supporter of Light The Night Walk – not just for the assistance it provides to patients and their families, but the medical progress it helps fund, to reduce the suffering and loss millions of families experience every year.

Please join the effort to help us bring more cures to those affected with cancer!

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Quote of the Week – #4

I have always admired the ability to bite off more than one can chew and then chew it. 

-William DeMille

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Remembering the Piper

1965This Sunday Philly plays host to the premier half marathon in the country; The Philadelphia Distance Run. I have done this race many times although I have missed the last couple of years do to race schedule conflicts. One of my best memories of this race was always seeing a guy named Brad Schoener playing the bagpipes in full regalia on the Falls Bridge. Brad was a permanent fixture of this race and everyone knew to look for him. Sadly, Brad lost his five year battle with cancer but not before deeply the touching the lives of countless people of all ages and all walks of life.

Brad was the music director in the Upper Darby (PA) School District where he was respected and adored by students, faculty, parents, and peers alike.  My own daughters played under Brad which is when we were first introduced to his unbridled passion for music, for people, and for life. Brad didn’t do anything halfway. Brad didn’t do anything small. When it came to his family, his music, and the students that he loved, Brad did everything huge. Brad lived big.

When Brad became ill he and I became much friendlier. We bonded as we joined forces as fellow cancer survivors. We spoke often about treatments, nutrition, life, and yes – music. He also approached me about doing a triathlon; which he did – twice. And he did it big. Although we will miss Brad on Falls Bridge this year, his presence, and his spirit will echo loud and clear through the talent of several of his students who will man the bridge and play in his honor.

If you are running on Sunday, please savor the sounds you’ll hear on Falls Bridge and take a minute to remember the brilliant life that those sounds represent.

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Thank You Roll Call

As I forge on in my fundraising effort with Ethan Zohn for the New York City Marathon, I want to pause for a minute to thank all who have contributed thus far. Thank you very much to the following people who have helped make a difference. Although I am close to my fundraising goal, I am not quite there yet!

Donations can be made by clinking HERE. And thank you all again.

David McCarthy
Dean Wesley
Dennis J Houseman
Ernest Quatrani
Catherine Donovan
Carol Ritter
Diane McGill
Erin Markham
Myfanwy Bonilla
Alan Morrison
Jane Mensack
Doreen Cannon
Erick Gavalis
Jerome Zurek
Kevin Carroll
Allison Karpinski
Susan Thornton
Ann Godley
Kay and Carter Craigie
David McCanney
Ted Metellus
Joseph Boylan
Dominic Durbano
David Dixon
Judith Gladden
Denise Gormley
Terri Sandman
Thomas & Theresa Snyder
Ann Murtaugh
Columbia Triathlon Association
Tim and Midge Kerr
Brian Gast
Jon Reichlin
Joe Uphoff
Lisa Tegler
Linda Rollo
Jen Schoener
Rhonda Cohen
Terry Snyder
Joan Rulli
Lisa Cicatiello

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Bill Bowerman Quotes

Ethan shot me a Bill Bowerman quote today and that made me want to search for a few more….. Below are a few gems from the greatest running coach of all time, taken from the website of the greatest American runner of all time – www.stevepre.com

Quotes from Bill Bowerman

“God determines how fast you’re going to run; I can only help with the mechanics.”

“A teacher is never too smart to learn from his pupils. But while runners differ, basic principles never change. So it’s a matter of fitting your current practices to the event and the individual. See, what’s good for you might not be worth a darn for the next guy.”

“If you have a body, you are an athlete.”

“The greatest improvement is made by the man who works most intelligently.”

“Don’t give anything away. Never make it easy for the guys you are trying to beat.”

“The athlete makes himself, the coach doesn’t make the athlete.”

“You don’t run at the mouth, you run on the track.”

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Aligning Systems

We went through a training exercise at work not too long ago called “Aligning Systems”. This exercise basically discussed the importance of having all of the various integrated components and moving parts of a larger “system” properly aligned and in sync with one another to be able to operate as smoothly, efficiently, and effectively as possible.  This was an exercise intended to maximize results in the corporate workplace but there are huge parallels to be drawn in how we align each of our own personal systems in order to maximize our everyday results as we strive towards our real life goals. As I look at the races that I have on my calendar between now and the end of November, I find myself in full system alignment mode. I am at that point where I am taking a lot of inventories and trying to determine what I have done right, what mistakes I may have made, and what I need to do to try to tie all of the pieces together.

The best way to describe this process is that it dissects all of the things that are required to reach your goal. First, you need to know your goal – and that is a big problem for many people. But once you have defined what your mission is, you need to determine what all of the things, people, or “systems” are that will assist you in attaining your goal. Once you have the systems identified you need to examine them and try to determine if each one is operating as efficiently as possible to get the job done.

Picture this analogy… most people have entertainment centers of some kind at home and they may have a number of wires, cables, extension cords, or power strips all plugged in BEHIND the furniture. When you turn on your electronic devices, they all power up so what’s the big deal right? Well, I would be willing to bet if you took the time and pulled the furniture away from the wall and examined each cable, wire, and plug and made sure it was connected in the most direct way possible, that you could probably eliminate some unnecessary something and make things a little more efficient. You would also eliminate some clutter.

The Chesapeakeman Ultra Distance Triathlon is less than two weeks away. It is another iron distance race consisting of a 2.4 mile swim, 112 mile bike, and a 26.2 mile run. Am I ready? I’ll answer that after I cross the finish line. From a physical perspective I think I will be fine. But of course “fine” is a relative term and I could always be more fine or less fine. I have crossed the ironman finish 10 other times and I am not too concerned about finishing. I’m sure I am in a good enough place physically to complete the race and smile after the fact. Of course there is nothing I can do at this point to get more fit before the race. What’s done is done, and the hay is in the barn, and whatever other cliché is appropriate in this situation. I do need to walk through some things mentally to completely dial into this thing. A couple more easy relaxing swims this week will help and a good head clearing run next weekend should do the trick. That will at least align the mental and physical systems for the most part. But this IS ironman; a distance that needs to constantly be treated with respect no matter how ready one might feel. It’s a distance that could chew you up and spit you out if mistakes are made. (and even if they aren’t).

All in all, I feel really good. I feel confident, at peace, and in a pretty good place. That was not the case a week ago so something must have happened to lift a little of the fog and point me back in the right direction. It could have been the bike ride this past Saturday, the run on Sunday, or the news of Ethan’s Zohn’s relapse. But something gave me my focus back. I usually do a pretty detailed race recap after events of this enormity so keep an eye out for that. And it looks like we have quite an entourage traveling to Cambridge Maryland for Chesapeakeman. That should make for a fun time.

Also keep in mind that “Chessyman” is not the end of my season. The NYC Marathon looms in the shadows and November 1st will be here before you know it. But aside from training and fundraising for this effort as part of Ethan’s team, I can’t really think about NYC. And I can’t even think about the fact that I am also doing the Philly Marathon three weeks after NYC …. Someone just might commit me. Anyway, my focus needs to be on Chesapeakeman for now.

Plenty more to follow. Thanks for everyone’s continued support.

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Struggles & Conflicts

I have been in a slight funk since returning from an amazing Labor Day weekend at the shore. That’s the main reason that I have been a little quiet this week. I have also been feeling like something was just a little off in the universe and I haven’t quite been able to put my finger on it. I knew something would eventually jolt my writing motivation, but I had no idea it would take the shape it did. I just received the below email from my buddy Ethan Zohn, who I was going to run the NYC Marathon with to support his charity Grassroot Soccer. Please read on. My response follows his email …

Dear GRS Marathon Team,

My cancer is back and wants to set up shop inside my body and destroy it.  Obviously this WILL NOT happen.  I WILL NOT let cancer win.  Emotionally, I’m just beyond the total shock and disbelief .  The reality of the situation is starting to set in and I have never been so scared in my life, for my life.  I will use every ounce of my mind, body, spirit and supernatural powers to stop this horrible situation.  But in order to do this I have to remain positive and endure a pretty intense path to perfect health.

I will be undergoing a clinical study titled:  Risk-adapted high dose chemoradiotherapy and autologous stem cell transplantation for patients with relapsed and primary Hodgkins Lymphoma.

This is basically a triathlon or “marathon” of hardcore super strong treatment. If you could hit the “reset” button on your body, this would be it.  In stage one, I will have two sessions of in-patient chemotherapy.  Starting this week I will be admitted to the hospital for 4 days to get infused with a combination of drugs called ICE.  Three weeks rest, then repeated.  Following ICE, I receive injections that force my body to produce lots of stem cells that will be harvested.  Stem cells mature into the cells your body need to function.  The harvesting process is like giving blood 4 hours a day for 5 days.  My healthy stems cells are frozen and stored for later use.  In stage two, I will get blasted twice a day for 14 days with a high dose of radiation.  In the final and most difficult stage, I will be admitted to the hospital for 30 days (yes a whole f’ing month), to get my final chemotherapy session to start my stem cell transplant.  For all you Seinfeld fans, I’m officially the bubble boy.  My body gets infused with my healthy stem cells, which will travel into my bone marrow to produce cancer free blood cells. Then I’m cured. Easy as 1,2,3…4,5,6,7,8,9…1000…1,000,000.

Once again, I will need to hijack all your thoughts, prayers and well wishes for the next year.  I know you all care about me and that means so much, especially now. I gain strength knowing that we are all fighting this together.  So, please don’t take a day off…unless you are watching soccer or making babies. I listen to every single message, but I’m horrible at calling people back. I’m way better over e-mail and I will do my best to keep you updated via e-mail, facebook and twitter (Can’t believe I just wrote that).

Thanks again for your unflagging support. I love you all and run strong.

Ethan

Dear Ethan and Team,

I am slowly processing all of this and in spite of this news which many would perceive as “bad”, I see two things that rise to the top of the message. And they are your underlying positive spirit and your sense of humor. Both are CRITICAL to anyone’s success no matter who their opponents are. Although I have always considered myself spiritual, it wasn’t until my leukemia diagnosis in 2006 that I really started to understand that people sometimes receive “gifts” like this for a reason.

E, you have already done amazing work with LLS, Livestrong, and other organizations and used your personal diagnosis as a way to raise funds and awareness so that others may benefit.  This battle will be no different and will only aid those efforts. You know how to do this … one treatment, one infusion, one appointment, one day, and one mile at a time…. The same way we all will attack 26.2 miles.

Your support system is vast. Check that, your support system is incomprehensibly immense. Your support system will help you get through this but in reality, YOU are strong enough to not only get through this, but to get through it authoritatively and decisively. You wrote the book on SURVIVORSHIP and everyone you know will continue to support and assist you.

Cancer is generally stupid. In your case, lymphoma just picked the wrong person to start a junk yard scrap with.

We’ve got your back.

Steve

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Quote of the Week – #3

Having once decided to achieve a certain task, achieve it at all costs of tedium and distaste. The gain in self confidence of having accomplished a tiresome labor is immense.

-Thomas A. Bennett

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Living the Tri Life

Just a heads up for anyone who may be interested. I will be featured in a show called “Living the Tri Life” which is a show about all things triathlon in the city of Philadelphia. The show airs on Monday (Labor Day) 9/7/09 at 1:30 in the afternoon on 10NBC.

Of course the angle for me is intended to be more motivational than anything else and is all centered around my leukemia diagnosis, triathlon, and Team in Training. There will be other familiar faces on the show as well. My footage was all shot at the Community YMCA in Lansdowne. I’m sure everyone has better things to do on Labor day (I know I do) but if you find yourself passing a TV at 1:30, check it out.

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"Be the change you wish to see in the world " - Gandhi
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