Tag Archives: chronic lymphocytic leukemia

Who Knew

By Steve | Published: October 28, 2016
Chronic lymphocytic leukemia is a very slow moving disease. So much so that people can be diagnosed in the very early stages but not need treatment for years. When I was diagnosed 10 years ago the disease could have been progressing for years prior to detection. One of the first questions that my doctor asked [...]
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Cutaneous Lymphoma Foundation Patient Conference

By Steve | Published: October 25, 2016
On Sunday October 30th I will be speaking at a patient conference held by the Cutaneous Lymphoma Foundation and hosted by Columbia University. My presentation on Sunday is entitled “Living Above Chronic Cancer” and will focus on some keys and critical choices that I’ve made in ten years of living with chronic lymphocytic leukemia [...]
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I’m All DONE

By Steve | Published: October 24, 2016
I am extremely happy to say that I am all finished with my chemo treatments!!! I had my check up this morning and the decision to stop was a pretty easy one. My labs all came back normal and my lymph nodes have all returned to normal size. There is no reason to continue. I [...]
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It’s a Feeling

By Steve | Published: October 20, 2016
When you live with a chronic disease like leukemia you have very heightened intuition. You develop a honed sense of self and learn how to analyze and differentiate between the little systemic bugs, chinks, and cliches that “normal” people face, and those that may be disease related. That skill becomes more advanced the longer you [...]
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2016 Chemo Round 4

By Steve | Published: October 12, 2016
I’m going to keep this update short and sweet because quite honestly, that’s how this round of treatment felt. Short, and sweet. Monday started with a checkup with my doc which went really well. My white count was a little low but that is to be expected at this stage of treatment. Given my incredible [...]
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Take THAT

By Steve | Published: September 27, 2016
Today’s edition of “how to beat up cancer” using visualization and mental imagery goes like this. On my midday run today, I envisioned taking my leukemia out for a run on a leash. We start out stride by stride but the leukemia soon trails a little behind me, then a little more. It starts to [...]
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2016 Chemo Round 3

By Steve | Published: September 13, 2016
For those of you keeping score at home…round 3 of chemo concluded today without any issues. My blood counts were good and I continue to both respond and tolerate treatment pretty well.  I haven’t slept yet since yesterday due to the beauty and curse of my favorite (said nobody ever) steroid decadron but sleeping is [...]
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What’s New? Glad You Asked

By Steve | Published: September 7, 2016
Happy Blood Cancer Awareness month!! I haven’t posted in a little bit but that doesn’t mean life hasn’t been busy. Let me try to catch you up to speed with some recent news and happenings. First, as I’ve been actively writing and talking about, I commence with round three of chemo treatment on Monday and Tuesday, September [...]
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Cancer’s Give and Take

By Steve | Published: August 22, 2016
Many of you have heard me say in the past that cancer has created more opportunities than it has taken away opened more doors that it has closed. You’ve probably heard me say that and dismissed me as a crazy man with delusional perspectives on life. I won’t deny that crazy claim from time to [...]
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2016 Chemo Round 2, Day 2

By Steve | Published: August 16, 2016
And BOOM, another round is in the books. I hit the rack pretty early last night after a full day of treatment and believe it or not actually got a little rest. I drifted off and on because the steroid decadron had me racing but I quieted myself enough to feel rested. Then bounced up [...]
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