Tag Archives: cll

National Cancer Survivors Day 2021

It’s been a long time since I’ve posted here. It’s not because I haven’t been active on social media. I’ve been very active on Facebook and Instagram but I’ve done a poor job of posting updates here as well. I vow to be better!! …. A few last words on this year’s National Cancer Survivors [...]
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National Cancer Survivors Day 2021 is Coming!

National Cancer Survivors Day is almost upon us. And I for one plan to make it much more than a single day celebration. So buckle up. Today I look back on the book that I wrote 6 years ago. This was the fifth book I had written and I felt that it was [...]
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The Long Run

My daughter wrote this piece for a non-fiction & memoirs creative writing assignment. While I’ve lived every step of this journey in real time and in the first person, hearing a loved ones interpretation of these same events proved very moving for me. Hopefully you’ll appreciate it as well. The Long Run Steve Brown sits attentively at [...]
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Living with CLL – WebMD

WebMD published a “Living With CLL” patient guide and asked me to contribute to the effort. Follow the link for the complete guide but my page is below.
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Living with CLL

I recently did an interview for Health Monitor and shared a few tips on living with a chronic and incurable cancer like chronic lymphocytic leukemia. Hopefully you enjoy reading it!
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On Surviving

When it’s chronic and incurable you don’t ever get to let your guard down and say “I survived that”. It’s never completely behind you and you live in the active state of survivorship each and every day. You have great days, you have good days, you have less than good days. Your shield is constantly [...]
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I’m on TOP

Last week I had a follow up with my oncolodoc. My blood work continues to behave and is responding exactly as hoped now being on the targeted therapy drug Ibrutinib for 5 months to treat my chronic lymphocytic leukemia. The road to “normalcy” continues but for all intents and purposes I FEEL no evidence of [...]
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Dance with Me

Quick update for those keeping score at home. Today is day 13 on my new daily chemo ibrutinib and I continue to see amazing results with virtually no side effects. I also had my 2 week oncolodoc check in today and he was equally pleased. My blood work is responding exactly as it’s supposed to. [...]
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Hope, Belief, Trust, and Science

For over 12 years I’ve lived with chronic lymphocytic leukemia. There  is no cure for this chronic blood cancer today. When things go well, you strive to manage the disease and treat it with conventional therapies when symptoms become problematic. Remission is the perpetual goal. And for over 12 years, we’ve done just that. With [...]
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Day 5 with Ibrutinib

Well, I am most ecstatic to give this update on what is now day 5 of my new chemo drug, Ibrutinib. While proven to be quite effective, there are a number of possible side effects associated with this drug. The keyword for me so far is “possible” because I have felt little to zero side [...]
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