Tag Archives: cll

Round 1 Post Treatment Blood Check

I had my post treatment check in this morning with my oncolodoc. Things are moving in the right direction. My WBC is coming down and the rest of my counts are still at overall safe levels. We know those will dip in the coming months but today they are good. Many lymph nodes are starting [...]
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Battle Cry at the Park – It’s a Very Real Thing

I wanted to elaborate a little more on my cancer treatment hill climb and battle cry that you may have seen this week. There is definitely a meaningful history to that and I’m very happy that it’s grown into even more. The venue is the Veterans Memorial Park on Lawrence Road in Marple Township.  The [...]
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Tuckahoe Sprint Duathlon

So, here’s the thing. I registered for the Tuckahoe (NJ) Sprint Duathlon long before we jumped into the chemotherapy pool and luxury spa. My hope is that I should still be able to pull this off. The race is next week, 7/31, and is a few short miles from our house in Marmora NJ. It’s [...]
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Neulasta Boost

Yesterday’s Neulasta booster shot went off without a hitch. If you are just joining our program, Neulasta is an injection given after a round of chemo to inject good, healthy, infection fighting white cells back into your system. This was given yesterday after receiving chemo on Monday and Tuesday of this week. One of the [...]
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Seemingly Innocuous and Viciously Toxic

It’s very strange to sit in a relaxing chemo recliner and watch bags of crystal clear and seemingly innocuous fluid slowly drip into your blood stream which are actually deadly killers. Here I sit the morning after two full rounds of chemo and I’m still feeling good. I did experience a mild bonk last night [...]
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2016 Chemo Round 1, Day 2

Round one is a wrap! I just finished up my second treatment day of the first round of chemo without any issues. We used the same precautionary cocktails as yesterday followed by a healthy dose of  Bendeka (Treanda). I have to say that I am really amazed at how good I felt coming out of [...]
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2016 Chemo Round 1, Day 1

Today was the first day of two which will be repeated over 4 – 28 day cycles in the coming months. In a word, today was long (6.5 hours), but I successfully tolerated my drugs, Rituxan and Treanda. Despite pre treatment cocktails consisting of Zofran, Benedryl, and Decadron, I did experience a few side effects (mild [...]
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I’ve Been “Called Out”

Remember back in elementary school when you heard someone say “I call you out after school”? This was one kid’s way of threatening another and giving them all day (or longer) to worry about it. It was simply a challenge to a dual and the terms were pretty simple. “I call you out after school… [...]
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Checking In and Checking Up with CLL

I reported out on social media last week that I received a good checkup with from my oncologist last Friday. While that is a very true statement, let me take a minute to elaborate exactly what “good” means. I walk out of his office at the conclusion of any appointment with an agreed upon understanding [...]
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The Leukemia & Lymphoma Society Applauds FDA’s Approval of Ibrutinib for Patients with Previously Treated Chronic Lymphocytic Leukemia

CLL is second indication approved by FDA for ibrutinib; previously approved for mantle cell lymphoma patients (White Plains, NY) - February 12, 2014 – Today’s U.S. Food and Drug Administration (FDA) approval of ibrutinib to treat patients with chronic lymphocytic leukemia (CLL) is a significant advance for patients with this blood cancer.   Ibrutinib received FDA approval in [...]
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