Tag Archives: cll

Dance with Me

Quick update for those keeping score at home. Today is day 13 on my new daily chemo ibrutinib and I continue to see amazing results with virtually no side effects. I also had my 2 week oncolodoc check in today and he was equally pleased. My blood work is responding exactly as it’s supposed to. [...]
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Hope, Belief, Trust, and Science

For over 12 years I’ve lived with chronic lymphocytic leukemia. There  is no cure for this chronic blood cancer today. When things go well, you strive to manage the disease and treat it with conventional therapies when symptoms become problematic. Remission is the perpetual goal. And for over 12 years, we’ve done just that. With [...]
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Day 5 with Ibrutinib

Well, I am most ecstatic to give this update on what is now day 5 of my new chemo drug, Ibrutinib. While proven to be quite effective, there are a number of possible side effects associated with this drug. The keyword for me so far is “possible” because I have felt little to zero side [...]
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A New Chapter

For 12 years I’ve managed my CLL by reacting to flare ups and relapses with periodic chemo treatments using drugs like Bendeka, Fludara, and Rituxan, and megadoses of steroids like Decadron, Prednidone. That accounted for 54 rounds of toxic chemo and God only knows how many steroid cycles over those 12 years. I experienced another flare [...]
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Diagnosis Anniversary

2/24/2006. It’s been 12 years since I was initially diagnosed with chronic lymphocytic leukemia. That’s 4,383 days. I’ll admit there have been a few of those days where all of the emotions associated with cancer may have gotten the better of me and I felt like throwing something in the Schuylkill River. But the majority [...]
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Bendeka & Teva Pharma Video

Here is the link to an info piece I did a while ago for one of my treatment drugs. The manufacturer, Teva Pharmaceuticals, has been using this video internally for a while, now it’s available for broader public consumption on their website. Click to view.
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Two Ways to Help Save Lives

Just sending a reminder to folks that you have two ways to help me in the fight against blood cancers. I’m currently registered for two different events, both of which benefit The Leukemia & Lymphoma Society. And both of which help save and improve the lives of people living with these cancers. Any support of [...]
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Ironman Lake Placid 70.3 Bib #24

This week the athlete bib #s were published for Ironman Lake Placid 70.3. There are a couple of thousand athletes registered for this race so I was pretty surprised to see that I was assigned #24. I’m not sure if these were assigned alphabetically or if those of us representing the Ironman Foundation were assigned [...]
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RemissionMan Blog Award

I was happy to learn that Feedspot has recognized this blog as a top 50 leukemia blog across all domestic and international leukemia sites on the web. I was actually 27th out of 50. The criteria used was a combination of Google reputation and search ranking, social media influence, quality & consistency of posts, and [...]
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CLL Society

One of the connections I made while in Chicago was with the CLL Society. The CLL Society Inc. is a patient–centric, physician–curated nonprofit organization focused on patient education, support, and research. Dedicated to addressing the unmet needs of the CLL and related blood cancer communities, our goal is to develop real, recent and relevant [...]
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