Category Archives: survivor

I’m on TOP

Last week I had a follow up with my oncolodoc. My blood work continues to behave and is responding exactly as hoped now being on the targeted therapy drug Ibrutinib for 5 months to treat my chronic lymphocytic leukemia. The road to “normalcy” continues but for all intents and purposes I FEEL no evidence of [...]
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Three Ways to Help

For over 30 years I’ve been tying together endurance sports and charitable giving.  2019 is affording me several opportunities to do more of the same. The links below will take you to the fundraising events I’m currently registered for and the corresponding charities for each event. Any help that you can give would be immensely [...]
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Speaking Engagements

As I continue to add 2019 races, events, and speaking engagements, I thought I would post this for reference. Click the link below and if I can be of any assistance to you or your organization, don’t hesitate to raise your hand! SteveBrownSpeakerNewBio
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Coming in 2019… Stay Tuned…

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Day 5 with Ibrutinib

Well, I am most ecstatic to give this update on what is now day 5 of my new chemo drug, Ibrutinib. While proven to be quite effective, there are a number of possible side effects associated with this drug. The keyword for me so far is “possible” because I have felt little to zero side [...]
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Diagnosis Anniversary

2/24/2006. It’s been 12 years since I was initially diagnosed with chronic lymphocytic leukemia. That’s 4,383 days. I’ll admit there have been a few of those days where all of the emotions associated with cancer may have gotten the better of me and I felt like throwing something in the Schuylkill River. But the majority [...]
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Broad Street 10 Miler

So….. here’s the deal. I decided to jump into the Broad Street 10 Miler with Team in Training and could use your help. This year marks 12 years living with chronic lymphocytic leukemia and 12 years working with The Leukemia & Lymphoma Society on multiple campaigns. I figured it was time to jump into another [...]
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Vigo Sighting

This was just so stinking cool. Over the weekend, I raced in the USA Triathlon Mid Atlantic regional championship at Atlantic City NJ. Upon my arrival on race morning I ran into a great friend and wonderful human being in Rob Vigorito. As USAT Regional Chair, “Vigo” was there to help out with the race. [...]
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Intestinal Fortitute

Greetings! On my ride yesterday I got to thinking about a high school soccer coach I had who used to preach the importance of having “intestinal fortitude” to be able to dig deep when you needed that something extra. We really didn’t get it as teenagers. But somewhere along the way of 30 years of [...]
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Cancer Support Community

And yet another contact that I made on my recent trip to Chicago was the Cancer Support Community. As the largest professionally led nonprofit network of cancer support worldwide, the Cancer Support Community (CSC) is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. [...]
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