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Category Archives: survivor
Welcome Calquence
My new weapon of choice in the ongoing battle against chronic lymphocytic leukemia. My last med was quite effective for about 3 years but then started yielding some undesirable side effects so we opted to move on down the line in treatment options. In my 15 + plus years living with this, I’ve now been [...]
Also posted in cancer, motivation Tagged astra zeneca, blood cancer, calquence, cll, leukemia, ratted therapy Comments closed
Cabrini Reunion
Great catching up with my old Cabrini buddy JK – Joe Kravitz to connect and score a few copies of Relentless Mettle. Grab your copy HERE! #cabrini #cabriniuniversity #cabrinialumni #survivor #relentless #relentlessmettle
Also posted in health & fitness Tagged cabrini college, cabrini university, cabrinialumni Comments closed
The Long Run
My daughter Jennifer wrote this piece for a non-fiction & memoirs creative writing assignment. While I’ve lived every step of this journey in real time and in the first person, hearing a loved ones interpretation of these same events proved very moving for me. Hopefully you’ll appreciate it as well. Happily, the period of unemployment [...]
Living with CLL – WebMD
WebMD published a “Living With CLL” patient guide and asked me to contribute to the effort. Follow the link for the complete guide but my page is below.
“Siriusly Fearless”
Tune in this Sunday, September 27th at 2:30 EST for “Siriusly Fearless”, a unique event focusing on stories of inspiration, survival, and courage.
Featuring @siri.lindley.3 and @RebekahKeat, Siriusly Fearless will share insights from people who’ve faced the trials of cancer, and gone on to make an impact on the world around them. Including yours truly!
Siriusly [...]
Also posted in cancer, leukemia & lymphoma society, triathlon Tagged cancelbloodcancer, endurancezonetv, goteam, survivor Comments closed
2020 Calendar
2020 calendar of events is still very much a work in progress. But here are a few things!
Also posted in health & fitness, racing, running, training, triathlon Tagged 2020 calendar, racing Comments closed
Thanks Peloton & Megan
A friend of our daughters submitted our story to Peloton for their Comeback promotion and as good fortune would have it, we won a Peloton bike with all the trimmings!! How very generous of Peloton and how very thoughtful of the friend who was so moved by our story that she took the time to [...]
Also posted in cancer, cycling, health & fitness, motivation Tagged comeback, peloton, recovery Comments closed
I’m on TOP
Last week I had a follow up with my oncolodoc. My blood work continues to behave and is responding exactly as hoped now being on the targeted therapy drug Ibrutinib for 5 months to treat my chronic lymphocytic leukemia. The road to “normalcy” continues but for all intents and purposes I FEEL no evidence of [...]
Also posted in cancer Tagged blood cancer, chemotherapy, chronic lymphocytic leukemia, cll, happy dance, ibrutinib, janssen pharmaceuticals, luna peak company, snow companies, targeted therapy Comments closed
Three Ways to Help
For over 30 years I’ve been tying together endurance sports and charitable giving. 2019 is affording me several opportunities to do more of the same. The links below will take you to the fundraising events I’m currently registered for and the corresponding charities for each event. Any help that you can give would be immensely [...]
Also posted in cancer, charity, health & fitness, leukemia & lymphoma society Tagged autism speaks, big climb philly, legacy of hope, leukemia & lymphoma society, love run, tcs nyc marathon Comments closed
Happy Diagnosaversary