Category Archives: cancer

Welcome Calquence

My new weapon of choice in the ongoing battle against chronic lymphocytic leukemia. My last med was quite effective for about 3 years but then started yielding some undesirable side effects so we opted to move on down the line in treatment options. In my 15 + plus years living with this, I’ve now been [...]
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The Patient Story Interview

Here is the finished product of the 5 part interview I recently did for @thepatientstory. The 5 segments track my 15 year journey from initial symptoms all the way through to the targeted therapy treatment I’m currently on…. and all 54 rounds of chemotherapy treatment in between. I usually struggle a lot with listening to [...]
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Team Relentless Grace

A week ago we were entertaining the concept of a running wheelchair to run and race with MG. Fast forward a week and BOOM…. Thanks to some very generous donors who contributed to our crowdfunding effort we placed our running chair order today! And thanks to a few creative minds and a collaborative effort we [...]
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National Cancer Survivors Day 2021

It’s been a long time since I’ve posted here. It’s not because I haven’t been active on social media. I’ve been very active on Facebook and Instagram but I’ve done a poor job of posting updates here as well. I vow to be better!! …. A few last words on this year’s National Cancer Survivors [...]
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National Cancer Survivors Day 2021 is Coming!

National Cancer Survivors Day is almost upon us. And I for one plan to make it much more than a single day celebration. So buckle up. Today I look back on the book that I wrote 6 years ago. This was the fifth book I had written and I felt that it was [...]
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Man & Woman of the Year Video

Click the link to see the video interview I did with Leukemia & Lymphoma Society’s Man of the Year candidate Derek Fitzgerald.
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The Long Run

My daughter wrote this piece for a non-fiction & memoirs creative writing assignment. While I’ve lived every step of this journey in real time and in the first person, hearing a loved ones interpretation of these same events proved very moving for me. Hopefully you’ll appreciate it as well. The Long Run Steve Brown sits attentively at [...]
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Living with CLL – WebMD

WebMD published a “Living With CLL” patient guide and asked me to contribute to the effort. Follow the link for the complete guide but my page is below.
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“Siriusly Fearless”

Tune in this Sunday, September 27th at 2:30 EST for “Siriusly Fearless”, a unique event focusing on stories of inspiration, survival, and courage. Featuring @siri.lindley.3 and @RebekahKeat, Siriusly Fearless will share insights from people who’ve faced the trials of cancer, and gone on to make an impact on the world around them. Including yours truly! Siriusly [...]
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Living with CLL

I recently did an interview for Health Monitor and shared a few tips on living with a chronic and incurable cancer like chronic lymphocytic leukemia. Hopefully you enjoy reading it!
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