Tag Archives: chronic lymphocytic leukemia

I’m on TOP

Last week I had a follow up with my oncolodoc. My blood work continues to behave and is responding exactly as hoped now being on the targeted therapy drug Ibrutinib for 5 months to treat my chronic lymphocytic leukemia. The road to “normalcy” continues but for all intents and purposes I FEEL no evidence of [...]
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The Power of Choice

Last night I was asked to say a few words at a wonderful community Prayer service. Below was the message I delivered . The Power of Choice When we first started these prayer services many months ago, as we all know, they were for my brother in law, Lefty Snyder. The intentions quickly grew to include me, [...]
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Dance with Me

Quick update for those keeping score at home. Today is day 13 on my new daily chemo ibrutinib and I continue to see amazing results with virtually no side effects. I also had my 2 week oncolodoc check in today and he was equally pleased. My blood work is responding exactly as it’s supposed to. [...]
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Hope, Belief, Trust, and Science

For over 12 years I’ve lived with chronic lymphocytic leukemia. There  is no cure for this chronic blood cancer today. When things go well, you strive to manage the disease and treat it with conventional therapies when symptoms become problematic. Remission is the perpetual goal. And for over 12 years, we’ve done just that. With [...]
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Day 5 with Ibrutinib

Well, I am most ecstatic to give this update on what is now day 5 of my new chemo drug, Ibrutinib. While proven to be quite effective, there are a number of possible side effects associated with this drug. The keyword for me so far is “possible” because I have felt little to zero side [...]
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A New Chapter

For 12 years I’ve managed my CLL by reacting to flare ups and relapses with periodic chemo treatments using drugs like Bendeka, Fludara, and Rituxan, and megadoses of steroids like Decadron, Prednidone. That accounted for 54 rounds of toxic chemo and God only knows how many steroid cycles over those 12 years. I experienced another flare [...]
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Diagnosis Anniversary

2/24/2006. It’s been 12 years since I was initially diagnosed with chronic lymphocytic leukemia. That’s 4,383 days. I’ll admit there have been a few of those days where all of the emotions associated with cancer may have gotten the better of me and I felt like throwing something in the Schuylkill River. But the majority [...]
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Two Ways to Help Save Lives

Just sending a reminder to folks that you have two ways to help me in the fight against blood cancers. I’m currently registered for two different events, both of which benefit The Leukemia & Lymphoma Society. And both of which help save and improve the lives of people living with these cancers. Any support of [...]
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The Color of My Shirt

So, I’ll share this…. One of the hassles about living with a chronic form of leukemia is that it’s always there. It may lie quietly in remission showing no clinical evidence of being there…. but it is there.  You may feel strong and fit and like your old pre-cancerous self, but the monster is in there…lurking. This [...]
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Ironman Lake Placid 70.3 Bib #24

This week the athlete bib #s were published for Ironman Lake Placid 70.3. There are a couple of thousand athletes registered for this race so I was pretty surprised to see that I was assigned #24. I’m not sure if these were assigned alphabetically or if those of us representing the Ironman Foundation were assigned [...]
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