Tag Archives: chronic lymphocytic leukemia

Relentless Mettle – My Cancer, My Rules Now Available

The manuscript and all art for my new book Relentless Mettle – My Cancer, My Rules was finalized and approved by Lulu Publishing. It is available NOW for download via the following distribution channels:    Publisher Direct  Apple iBooks Amazon Kindle Barnes & Noble Nook Kobo   20% of all sales royalties will be donated to The Leukemia & Lymphoma Society.   Here is your excerpt of the day:     “Diagnosis is [...]
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WEGO Health

I’ve been nominated for three different WEGO Health Activist awards. WEGO is a network of over 100,000 of the most influential members of the online health community. They consist of bloggers, tweeters, pinners, and leaders of Facebook pages who are empowered patients that drive the healthcare conversation online, across virtually every health topic and condition. My nominations include Health [...]
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Happy Holiday Check Up

Greetings and Happy Holidays. Just a quick oncology check up report for you today. I had my routine visit and blood draw yesterday. My white count was slightly elevated and skewed a little to a higher lymphocyte %. I also have a couple of enlarged lymph nodes.  I otherwise feel great and the rest of my [...]
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Delaware News Journal Article

The Delaware News Journal ran the following story on me in connection with National Cancer Survivor's Day. While it's I live in Pennsylvania, I have worked in Delaware for many years.
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Clean Bill

For those keeping score at home, I had a follow up appointment with my favorite oncologist the other day. Everything is GOOD. My blood work is completely normal and I continue to feel really, really good. The results from a recent CT scan actually showed signs of a little growth against the previous CT, but [...]
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New Opportunities

It seems they found me through my blog and my writings about my diagnosis and now want to partner and manage media opportunities for me with Genentech. We had a great chat on the phone, I then received the below email. It just goes to show you that you never know who is listening. Read below:
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The Leukemia & Lymphoma Society Applauds FDA’s Approval of Ibrutinib for Patients with Previously Treated Chronic Lymphocytic Leukemia

CLL is second indication approved by FDA for ibrutinib; previously approved for mantle cell lymphoma patients (White Plains, NY) - February 12, 2014 – Today’s U.S. Food and Drug Administration (FDA) approval of ibrutinib to treat patients with chronic lymphocytic leukemia (CLL) is a significant advance for patients with this blood cancer.   Ibrutinib received FDA approval in [...]
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And I’m Out

And I’m Out I am happy to report that today I finished the last of my chemo treatments, hopefully for a while. If you have been following along, you’ll recall I had a few chronic lymphocytic leukemia symptoms reappear after having been in remission for quite some time. The answer was to zap it with between 4-6 [...]
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Another Treatment Down

Yesterday I sat through treatment number three in this current series of Rituxan sessions to treat a few of my leukemia symptoms that reappeared a few months ago. We made the decision to treat it once a month for anywhere between 4-6 months. So, 3 down and 1-3 to go. I feel great and I am looking [...]
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Riding Life’s Roller Coaster

It’s been an interesting few weeks. On November 3rd, I crossed the Verrazano Narrows bridge with 50,000 of my closest acquaintances on my way to finishing my 4th NYC marathon. It would have and should have been NYC number 5 but Hurricane Sandy had other thoughts last year. In a nice display of class, those [...]
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