Tag Archives: blood cancer

Dance with Me

Quick update for those keeping score at home. Today is day 13 on my new daily chemo ibrutinib and I continue to see amazing results with virtually no side effects. I also had my 2 week oncolodoc check in today and he was equally pleased. My blood work is responding exactly as it’s supposed to. [...]
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Hope, Belief, Trust, and Science

For over 12 years I’ve lived with chronic lymphocytic leukemia. There  is no cure for this chronic blood cancer today. When things go well, you strive to manage the disease and treat it with conventional therapies when symptoms become problematic. Remission is the perpetual goal. And for over 12 years, we’ve done just that. With [...]
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A New Chapter

For 12 years I’ve managed my CLL by reacting to flare ups and relapses with periodic chemo treatments using drugs like Bendeka, Fludara, and Rituxan, and megadoses of steroids like Decadron, Prednidone. That accounted for 54 rounds of toxic chemo and God only knows how many steroid cycles over those 12 years. I experienced another flare [...]
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Diagnosis Anniversary

2/24/2006. It’s been 12 years since I was initially diagnosed with chronic lymphocytic leukemia. That’s 4,383 days. I’ll admit there have been a few of those days where all of the emotions associated with cancer may have gotten the better of me and I felt like throwing something in the Schuylkill River. But the majority [...]
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Two Ways to Help Save Lives

Just sending a reminder to folks that you have two ways to help me in the fight against blood cancers. I’m currently registered for two different events, both of which benefit The Leukemia & Lymphoma Society. And both of which help save and improve the lives of people living with these cancers. Any support of [...]
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Seeptember is Blood Cancer Awareness Month

During Blood Cancer Awareness Month this September, The Leukemia & Lymphoma Society is reminding everyone that while breakthrough therapies are saving lives, work still needs to be done to find cures – not someday, but today. Thanks to LLS-funded research, new safe and effective treatments, once unimaginable, are saving lives today. Cures for many patients with [...]
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Jackie

But this was different. This was family. This was Jackie. For the first time I was actually nervous about saying something wrong.
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