Vigo Sighting

By Steve | Published: August 7, 2017

VigoThis was just so stinking cool. Over the weekend, I raced in the USA Triathlon Mid Atlantic regional championship at Atlantic City NJ. Upon my arrival on race morning I ran into a great friend and wonderful human being in Rob Vigorito. As USAT Regional Chair, “Vigo” was there to help out with the race. Vigo and I have a great history and go back to 2004 when I started racing a number of his Tri Columbia events. Vigo was also very instrumental in my leukemia treatments and healing in many ways. I posted the following photo and text on social media:

“It’s a GOOD day when you get to the race and have an opportunity to hang out with one outstanding human in Rob Vigo Vigorito! It was Vigo’s Chesapeakman Iron Distance Race that I did a few months after my initial chemo treatments in 2006. Vigo gets 100% of the credit for naming me “Remissionman”. #triac2017″

The awesome part was this comment I got on my post from a total stranger to me who is friends with Vigo:

“Wow! I raced that event and remember your family at the school with all kinds of signs and cheering about the “Remissionman”. Awesome stuff! Never did know who it was till just now”.

Love that stuff.

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Intestinal Fortitute

By Steve | Published: July 31, 2017

Steve BikeGreetings! On my ride yesterday I got to thinking about a high school soccer coach I had who used to preach the importance of having “intestinal fortitude” to be able to dig deep when you needed that something extra. We really didn’t get it as teenagers. But somewhere along the way of 30 years of racing, 12 Ironman finishers, 26 marathon finishes, a couple of DNFs, and 54 rounds of chemotherapy, I got it. Intestinal fortitude will lift and carry you over rough spots that you didn’t think you could get through. Training may unravel, a race may fall apart, a nutrition plan may fail. But intestinal fortitude will never let you down, unless you consciously decide to let it.

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Breaking Team in Training News

By Steve | Published: July 11, 2017

Registration for Saint Anthony’s Triathlon on April 29th, 2018, has opened. Join the Team today to take advantage of the Early Bird commitment level pricing. Use code TRITNT to join for free ($100 value, expires 7/31/17) http://bit.ly/TNTFY18Reg

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RemissionMan Blog Award

By Steve | Published: July 5, 2017

I was happy to learn that Feedspot has recognized this blog as a top 50 leukemia blog across all domestic and international leukemia sites on the web. I was actually 27th out of 50. The criteria used was a combination of Google reputation and search ranking, social media influence, quality & consistency of posts, and an editorial review by Feedspot’s team. Cool stuff. It’s nice to know that people are reading.

blogaward

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2017 TCS NYC Marathon

By Steve | Published: June 22, 2017

In November I will be back in the Big Apple to take on the New York City Marathon for the 8th time. This year I will be racing for Team RTR (Racing to Register). Racing To Register’s main goal is to increase the number of potential donors available to patients who are in need of a lifesaving bone marrow or stem cell transplant.

When I was first diagnosed with leukemia in 2006, my medical team discussed the possibility of a stem cell transplant at some point of my journey. I haven’t needed one yet but that possibility remains on the horizon.

You can help by making a modest donation of any amount HERE.

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Rothman Ambassador

By Steve | Published: June 16, 2017

The Rothman Institute liked my story and wanted to run it as part of their Ambassador program. You can check it out here:

Steve – Meniscectomy

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Cancer Support Community

By Steve | Published: June 7, 2017

And yet another contact that I made on my recent trip to Chicago was the Cancer Support Community. As the largest professionally led nonprofit network of cancer support worldwide, the Cancer Support Community (CSC) is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. CSC achieves its mission through three areas: direct service delivery, research and advocacy.

The organization includes an international network of Affiliates that offer the highest quality social and emotional support for people impacted by cancer, as well as a community of support available online and over the phone. The Research and Training Institute conducts cutting-edge psychosocial, behavioral and survivorship research. CSC furthers its focus on patient advocacy through its Cancer Policy Institute, informing public policy in Washington, D.C. and across the nation.

I’ve also added this organization to the LINKS page of my site here. You can learn more at cancersupportcommunity.org

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CLL Society

By Steve | Published: June 7, 2017

One of the connections I made while in Chicago was with the CLL Society. The CLL Society Inc. is a patient–centric, physician–curated nonprofit organization focused on patient education, support, and research. Dedicated to addressing the unmet needs of the CLL and related blood cancer communities, our goal is to develop real, recent and relevant information and to be the “go to place” for CLL patients and caregivers.

I’ve added this organization to the LINKS page of my site here. You can pay them a visit at cllsociety.org.

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Chicago Visit With Team Teva

By Steve | Published: June 2, 2017

Chicago CollageI was honored to be in ChiTown this week as part of the Bendeka Patient Advocacy Groups Advisory Board hosted by Teva Pharmaceuticals. Some of you might recall that I was treated with Teva Pharmaceutical’s drug Bendeka last year with very positive results. While in Chicago I had the opportunity to meet with some of Teva’s partners and discuss brand and treatment awareness from a patient’s perspective.

I was fortunate to have stumbled upon some excellent running trails during my brief visit. Which included the River Walkway along the Chicago River as well as the path surrounding Lake Michigan. Amazing runs and views. Including this skyline view from my hotel room.

Chicago Night SkyThis is just another opportunity to engage with the oncological community in an effort to continue to raise the bar and advance the mission. It’s another example of living above and not simply with chronic leukemia.

I also made a couple of good connections which will likely lead to some new partnerships and ventures on the horizon. Control the things you can control. Get involved.

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Team in Training Greeting from Ethan

By Steve | Published: June 2, 2017

Our Team in Training athletes received some positive energy and well wished from my buddy Ethan Zohn the other day by way of this special video message. Check it out HERE.

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