Philly Health Watch Interview

Here is the interview I recently did with my buddy Sergio at Philly Health Watch.

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Steadfast, Relentless, and HEADstrong

head plaqueI am still struggling over finding just the right words to appropriately describe how moved I was at the 2nd Annual HEADStrong Lime Light Gala, held on March 23rd at the Hyatt at Penn’s Landing in Philadelphia or how extremely honored I am to be the recipient of the Nicholas E. Colleluori Award for my contributions in the field of blood cancer.

This was simply an amazing night put on by an amazing family in honor and in memory of their son Nick, and the heroic crusade that he started through his vision of the HEADstrong Foundation.

HEADstrong is the real deal. The Colleluori family is the real deal. Every single person that I met Friday night was driven, committed, and loyal to HEADstrong and to the Colleluoris. You cannot spend 30 seconds with this family without feeling the love and dedication they feel for Nick and for Nick’s dream.

I thought I had orchestrated my thoughts and had a pretty good idea of the things I wanted to include in my brief acceptance talk. But the truth is I was thrown a little emotionally off guard as my bio was being read and my name called by Master of Ceremony Pete McCarthy. As Pete talked about my background, the entire Colleluori family gathered to the front of the room and stood in line, with Cheryl Colleluori holding a crystal plaque commemorating the award. Nick’s family stood tall and stood proud and walking up to that was quite a moving sight. And while it was almost a little intimidating at first, by the time I reached the family I was reminded of the solidarity that the warriors in this fight all share. I felt that strength. And I felt that our movement and march was even more powerful.

head coll reception lineOf course what made this night even more special for me was the fact that I was able to share it with my family. Nothing I do …. no award that I receive, no finish line that I cross, counts without them. They are the reason and the motivation behind everything that I have been blessed and fortunate enough to be able to do.

head brown famThe mission of the HEADstrong Foundation is to carry on the legacy and vision of HEADstrong founder Nicholas Colleluori through advocating, fundraising and supporting those affected by blood cancer and those working towards eliminating it. In just a few short years of existence, they have evolved into an organization with the strength and visibility of one ten times its size. The reason for their success in my opinion is that every person involved with this mission is personally committed and connected to who Nicholas Colleluori was and what he stood for; and continues to stand for.

head coll famBut they cannot do it alone. And I was so impressed by everything that I saw on Friday night that I vowed to remain on board and to do whatever I can going forward to continue to drive Nick’s vision and eradicate blood cancers. Please learn more at www.headstrongfoundation.org

In the words of Nick Colleluori:

“Make use of the time you have and don’t stress the little things. Have a smile and enjoy what you can get out of life”.

Click HERE to listen to the acceptance of the award.

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HEADstrong’s Lime Light Gala

Next week I am being honored by the HEADstrong Foundation for  my contributions to blood cancer. I am really honored and very much looking forward to what will be a great night. Details are below.

limelightOn Friday, March 23, 2012 the HEADstrong Foundation will roll out the lime green carpet for what has become one of the most special events in all of lacrosse. The 2nd Annual Lime Light Gala; an evening in remembrance of HEADstrong founder Nicholas E. Colleluori, honoring the patients, families, survivors and victims of blood cancer and benefitting Nick’s House, the Nicholas E. Colleluori Lymphoma Research Fund at the Abramson Cancer Center and the City of Hope.

The event will be held at the Hyatt Regency Philadelphia at Penn’s Landing from 6:30 to 11:30 p.m. Tickets are $200 per seat and there are sponsorship and giving opportunities still available. While the event includes cocktails, dinner, program and a silent auction, the true purpose is to build awareness and support for the fight against blood cancer.

This year the HEADstrong Foundation will present the Nicholas E. Colleluori Award to a survivor demonstrating heroics and perseverance in the fight against blood cancer. The program will also feature several lacrosse personalities, celebrities and other performers.

“Of all of the amazing events that the HEADstrong Foundation is involved with during the year the Lime Light Gala is the one that is most significant. It is a celebration of my son Nicholas’ life, what he meant to the game of lacrosse and most importantly what the lacrosse community meant to him. It is our hope that our guests will leave with a renewed appreciation of the work that is being done to improve the quality of life for patients and families of blood cancer and inspired to get further involved. We wish to extend an invitation to all that can attend the Lime Light Gala.” – HEADstrong President and Nick’s Mom Cheryl Colleluori

For purchasing tickets and more information on the HEADstrong Foundation and the Lime Light Gala visit www.HEADstrongfoundation.org. The event is a formal black-tie affair however guests are encouraged to wear lime green. Tickets are subject to limited availability.

Sugar House Casino will provide complimentary valet parking for guests of the HEADstrong Foundation’s 2nd Annual Lime Light Gala. Trolley shuttle service provided by Philadelphia Trolley Works & 76 Carriage Company will begin transporting guests at 5:30PM and will run through 8:30PM, service will then resume at 9:00PM and run through 12:00AM.

HEADstrong Foundation works to advocate, raise funds for and to support those affected by blood cancer or working to eliminate it.   Foundation generates funds for blood   research, distributes grants and provides assistance to patients and survivors of blood cancer. In addition, HEADstrong Foundation awards scholarships and grants for students with ambitions of entering the medical field. Founder Nick “Head” Colleluori” attended Hofstra University where he played lacrosse. While at Hofstra Nick was diagnosed with Non-Hodgkin’s Lymphoma. While sick he began counseling other patients and began laying the framework for what would become the HEADstrong Foundation, in an effort to raise cancer awareness and help others and future patients that found themselves in a similar situation. In August of 2006 he even found the strength to play in one last lacrosse game. Nick passed away on November 28, 2006 at the age of 21. Even though he is gone, his memory and relentless determination lives on through the HEADstrong Foundation.

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Comcast Sportsnet NET IMPACT Episode

Our local Comcast affiliate featured me on their show NET IMPACT Philly. Here is the link to the clip. NET IMPACT.

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Reasons

I connected with two more people last week who were looking for cancer support and help. One is himself  a patient with my same blood cancer. I was introduced to him through the Leukemia & Lymphoma Society’s First Connection program. And the other is a guy I previously knew whose wife was recently diagnosed.

The LLS connection was a phone call with follow up email and facebook connections. I love making these calls and feel like the person on the other end really benefits. I hope so anyway. My new buddy Jim is a great guy …. teacher…. runner…. musician. He will be blogging through his treatment journey and I am looking forward to walking alongside him as he does.

And in an effort to spread a little hope, while still respecting their confidentiality and keeping things anonymous, I am posting my email exchange with my other buddy.

Hi Steve,

Not sure if you remember me or not. My wife was recently diagnosed with cancer I am looking for more info. I see you do a lot with local groups and more. If you could pass along any info I would appreciate it. Possibly looking into walks or runs. Or just anything.

Thank you

________________________

Of course I remember you! I’m sorry to hear of your wife’s diagnosis but admire your desire and willingness to jump in and try to do something. If you want to tell me more about her specific cancer perhaps I can out you in touch with more targeted groups. There are a number of great groups with a presence here in the tri state area who also put on great events.

For starters The American Cancer Society is always a good place to start. Their main site is http://www.cancer.org/

They also do an awesome event called Relay for Life. Check that out here – you can search your area of choice and there are many in DE.  http://www.relayforlife.org/

The Susan G Komen foundation is another organization doing amazing things, particularly with breast cancer but not necessarily limited to that. Their Mother’s Day walk and run in Philly is unbelievable and their 3 day 60 mile walk is getting very popular. Info on them can be found here http://komenphiladelphia.org/

I am personally very involved with the Leukemia and Lymphoma Society. They have a number of great campaigns and programs in DE, PA, and NJ. Their main site is www.lls.org and you can search your local chapter.

And I saved the best for last. Please check out Imerman Angels – http://www.imermanangels.org/ This is a support mentoring group who will align you with another survivor within your general demographic simply to have a shoulder to lean on of someone who has been there. Once you contact them, an “angel” would reach out to your wife and it would be up to her how much or little contact she would get from her angel. It’s a great group. I am one of the angels and have been asked to reach out to people many times. It’s always a great experience for both of us. I have had some that ended up being ongoing connections and some that were simply one brief call.

Hopefully this will be a good start. Keep in touch and let me know if there is anything I can do. I would be happy to speak to either or both of you… or just be at the ready should you need some more help.

Keep in touch. And stay positive!!

Steve

So I guess my message here is that you need not go this journey ALONE. There is help. There are resources. There are people ready and willing to connect for support.

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A Couple of Quick Updates

Just a few quickies to keep people in the loop. First of all, I added the new National Harbor Ironman 70.3 to the schedule this year. Race date is August 5th and this will fit in nicely between Eagleman Ironman 70.3 in June and Chesapeakeman Ultra Triathlon in September. The race was my birthday present from MG!

I mentioned being invited to speak at the HEADstrong Gala at the end of March…. as it turns out, they don’t want me there as a quest speaker, they want me there to honor me with the Nicholas Collelouri Award. I am extremely honored and very much looking forward to this event.

Vince Papale asked me to be a part of a new book project that he and his wife Janet are working on. I think the book will feature cancer success stories or inspirational stories of some kind. Not sure of all of the details, but very excited to be a part of it.

Look for a new video interview with Sergio and me on Philly Health Watch. It should be posted on Thursday March 8th.

Lastly, my Comcast Net Impact feature will debut on Thursday Match 8th and will run repeatedly throughout the month of March. If it is any good, all the credit goes to the show’s producer Neal Slotkin. Check your listings for Net Impact on Comcast Sportsnet.

Stay tuned!

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Make it FIT

My new Philly Health Watch article has been posted.

Your New Year’s resolutions should be handled no differently than any other goal that you set for yourself. Those goals should be realistic and attainable. Those goals should also be written down somewhere to serve as a reminder of your commitment and hopefully you are tracking your progress along the way.  Many of you have set goals or made resolutions for yourself. And I hope you are all still on course and sticking to your plan. But what happens when your plan becomes challenged as you react to all of life’s curve balls and detours?

Continue reading HERE

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SIX

6 years ago today, a doctor that I had known for all of one week gave me an opportunity. He punched my golden ticket. While I didn’t quite see it that way on the afternoon of February 24th, 2006, I was given an opportunity to help, to serve, to guide, to mentor, to coach, to care, and to give hope. On that afternoon, I was diagnosed with leukemia. I can honestly say that the worst part about my leukemia experience was simply in hearing the news and conveying it to loved ones.

The tough part was finding a way to reconcile the fact that someone like ME could get something like THAT. But once I was able to digest that news, the doors flew open and the opportunities became abundant. As I look in my mirror today, it was little more than a speed bump. And I think I have been able to do some pretty damn good things with it… and meet some amazing people.

So while the cancer world may have thought it threw me something I couldn’t hit, I launched it 450 feet to dead center….. and am doing a very slow, celebratory, and defiant – yet thankful trot around the bases. And smiling. 

The key is not in how you live WITH it, it’s in how you live ABOVE it.

Happy diagnosis day to me.

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Comcast Sportsnet’s Net Impact

We shot some more footage for my upcoming feature on the Comcast Sportsnet show, Net Impact yesterday. Myself, my wife, both daughters, and granddaughter went to the veteran’s memorial park where my dad has a bench and filmed a bunch of family, as well as running and biking sequences.

memorial parkWe shot some potentially very inspirational footage. This is the park that we visited immediately after hearing of my leukemia diagnosis 6 years ago.  On February 24th, 2006,  my wife and I left the oncologist’s office and drove to the park to talk through our plan of attack in the presence of my dad. Then I proceeded to run up a short hill, (seen in photo), let out a brief but vocal battle cry, and deemed myself ready to kick the snot out of leukemia – which I did.

This should put the finishing touches on filming. I am very curious to see how it turns out. The show is anticipated to air in March. Will keep you posted.

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Lance Returns

Triathlete and Inside Triathlon editors got to chat with Lance Armstrong on the heels of the announcement that he’ll be racing a full season of Ironman 70.3 events, as well as Ironman France. Today the Lance Armstrong Foundation also announced a new partnership with Ironman to raise more than $1 million for people affected by cancer.

Complete story can be found HERE

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"Be the change you wish to see in the world " - Gandhi
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