Advancing to the Be Well Philly Health Hero Challenge Finals

Just wanted to thank everyone for all of their votes and support during the Be Philly Health Hero Challenge. I am happy to say that we have advanced to the finals. More details to follow but here is the official announcement from Philadelphia Magazine. I am looking forward to one heck of a campaign from 10/16-10/29 so that we can earn a nice donation to the Leukemia & Lymphoma Society.

Thanks again for everyone’s help thus far.

CLICK FOR MORE

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Lance Armstrong to Participate in the Rev3 Half Full Triathlon

Third Annual Event Benefits the Ulman Cancer Fund for Young Adults 

 

Sept. 19, 2012 – Baltimore – Today, the Ulman Cancer Fund for Young Adults announced that Lance Armstrong will race side-by-side with fellow cancer survivors in the third annual  Half Full Triathlon on Oct. 7, 2012 in Howard County, Md. Armstrong plans to take part in the half distance, which includes a .9-mile swim, 56-mile bike ride and a 13.1-mile run. He will compete in the cancer survivor wave, beginning at approximately 7:30 a.m.

 

“I am looking forward to competing alongside my fellow cancer survivors in the Half Full Tri,” said Armstrong, founder and chairman of the Lance Armstrong Foundation. “This race is a great example of what cancer survivorship is all about – not just surviving this disease, but truly living life on your own terms. My Foundation is proud to support the Ulman Cancer Fund and the great work they’re doing on behalf of young adult cancer survivors.”

 

“I couldn’t be more excited to welcome Lance back to my hometown to support an event benefiting the organization I created with my family in college,” said Doug Ulman, Fund founder and president and CEO of the Lance Armstrong Foundation. “Lance’s support of the Ulman Cancer Fund and the young adult cancer movement has been and continues to be invaluable.”

 

“We cannot thank Lance enough for joining us in Howard County for the Half Full and providing an amazing boost of energy and excitement to our event,” said Ulman Cancer Fund President and CEO Brock Yetso. “Lance is arguably the most visible and vocal cancer survivor on the planet. Having him support our organization will ultimately help us support more young adults with cancer.”

 

“Half Full has always been about raising awareness and resources to support our programs in the young adult cancer fight,” said Ulman Cancer Fund COO and Half Full Race Director Brian Satola. “We thank Lance and the rest of our athletes for supporting an event that will enable us to change countless lives.”

 

The Half Full Triathlon will take place in Howard County, MD where the Ulman Cancer Fund was founded and currently has an office. “Howard County is excited host the 3rd Annual Half Full Triathlon and we look forward to welcoming Lance to town,” said Howard County Executive Ken Ulman. “We remain committed to the health and wellnessof our community and Lance’s participation in this event will only enhance our communities efforts in raising money and awareness to support the fight against cancer.” 

 

Armstrong has been one of the Ulman Cancer Fund’s largest individual donors making a $100,000 gift to the organization in 2007 to help establish a young adult patient navigation program now being offered in three cancer centers in the Baltimore/Washington, DC Metro area. From 2004 to 2007, the Ulman Cancer Fund was the recipient of three LIVESTRONG community grants supporting educational resources created to support cancer patients and their families.

 

About the Ulman Cancer Fund for Young Adults

The Ulman Cancer Fund for Young Adults is the national leader in providing specialized support for young adults affected by cancer. With nearly 70,000 young adults diagnosed every year, our organization helps young people fight the disease and navigate treatment by providing access to information, support groups and other specialized programs. UCF Patient Navigation Programs have set a national standard and can be accessed remotely or through onsite Patient Navigators at a growing number of hospitals in the Mid-Atlantic region. UCF is a founding member of the LIVESTRONG® Young Adult Alliance and a national pioneer in developing innovative approaches in cancer support. UCF enhances lives by supporting, educating and connecting young adults, and their loved ones, affected by cancer.

 

For more information, please visit, www.ulmancancerfund.org.

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Team In Training’s Stephen Brown is a Semi-Finalist for Health Hero Challenge

Conshohocken, PA (September 17, 2012) – The Leukemia & Lymphoma Society (LLS) of Eastern Pennsylvania applauds Team In Training’s (TNT) coach Stephen Brown of Delaware County for being one of the semi-finalists for Be Well Philly Health + Hero Challenge.

In February of 2006, Brown was diagnosed with chronic lymphocytic leukemia (CLL). Wasting no time, he underwent four rounds of chemotherapy. He maintained his baseline fitness level, often running home from his treatments and quickly reached complete remission. By July of that same year, Brown was back to racing triathlons and a few months later crossed the finish line of his 8th career iron distance triathlon (2.4 mile swim, 112 mile bike, 26.2 mile run). His diagnosis drew him to LLS’ Team In Training program where he signed on as one of the triathlon coaches.

“Becoming involved with TNT has become the perfect partnership. I get to train eager triathletes in a sport that I am very passionate about and in exchange they are raising funds and awareness for blood cancers like mine. It simply does not get any better than that,” said Brown.

The editors of Philadelphia magazine selected 16 semi-finalists from a pool of nearly 500 entries for their first-ever Health Hero Challenge, in search of locals who are making a difference in health and wellness in the community. In the month of September, contestants will face off in an online competition. Each week, the magazine will feature four semi-finalists on Facebook for readers to vote for their favorite contestant. The winner of each round goes on to the finals in October. The winner, decided purely by the fans, will be announced at a celebration in November and will be featured in a future issue of Philadelphia magazine.

Voting for Brown will take place Tuesday, September 25th though Monday, October 1st. People can vote once a day throughout the voting period. To vote, please visit Be Well Philly’s Facebook page (www.facebook.com/BeWellPhilly).

Brown and his wife MG live in Delaware County, where he also serves on the Board of Directors of the Community YMCA of Eastern Delaware County. He is also involved with LLS’ First Connection program, where he connects with other patients and their family members.

About Team In Training

Team In Training (TNT) is The Leukemia & Lymphoma Society’s sports endurance training program that provides training for ½  marathon, marathon, triathlon, or century (100-mile) bike ride. Team members raise funds to help support The Leukemia & Lymphoma Society in exchange for certified coaches, training sports education clinics, a personal fundraising website, support from staff and teammates, a fundraising mentor, event fees, and lodging and airfare to more than 60 accredited events in the United States and abroad. The society uses at least 74 cents of every dollar raised for cancer programs, funding research to find cures to leukemia, Hodgkin’s and non-Hodgkin’s lymphomas, and myeloma as well as assistance with the often overwhelming burdens faced by patients and their families currently fighting blood cancers.

As of 2010, TNT has had more than 500,000 volunteer participants raising over $1 billion to support blood cancer research and patient services for The Leukemia & Lymphoma Society.

About The Leukemia & Lymphoma Society

The Leukemia & Lymphoma Society (LLS) is the world’s largest voluntary health agency dedicated to blood cancer. LLS mission is to cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world and provides free information and support services.

Founded in 1949 and headquartered in White Plains, NY, LLS has chapters throughout the United States and Canada including the Eastern Pennsylvania chapter. To learn more, visit www.LLS.org or contact the Information Resource Center at (800) 955-4572, Monday through Friday, 9 a.m. to 6 p.m. ET.

Contact:

Gregory R. Seitter / (610) 238-0360, Ext. 6796 / Gregory.seitter@lls.org

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Philly Rock & Roll Half Marathon

I am happy to announce that I have been asked to be the guest speaker at the Team in Training dinner for the Rock & Roll Half Marathon here in Philly. The dinner and talk is this Saturday, September 15th. And race day is Sunday.  It’s always an honor and a pleasure to address the TNT family.

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Health Hero Challenge Voting Link

Here is the complete contest info and voting button. Don’t forget, my voting week begins on 9/25. You can vote everyday that week, but only once per day. The overall winner will receive a very nice donation to the charity of the winner’s choice, which for me will be the Leukemia & Lymphoma Society. Help me make a difference in the fight against blood cancers.

See link for details.

CLICK HERE

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REMISSION …Take Two

chemo lights outI had a great surprise this morning when I checked in with my Dr. right before my scheduled Rituxan treatment session. If you recall, today would have been my 4th treatment out of 6 that they ordered to handle my Chronic Lymphocytic Leukemia relapse symptoms. When the Dr. walked in he asked me when I wanted to come back and see him again. Of course my wife and I looked at him a little strange and said, “Next week I suppose…just like the last 4 weeks”. “Today is only number 4 of 6 so I still have 2 more to go after today”.

At this point the Dr. looked at US like we were the crazy ones and said, “Oh, no, sorry. I only want you to do 4 treatments in total. I would have only stretched to 6 if I was worried about anything and needed to keep that option open. But I’m worried not at all. We’ve accomplished what we needed to accomplish and you are back in REMISSION so you are done after today”.

chemo chillI kind of spaced out after that, somewhat in disbelief over what I just heard. But I am incredibly thankful for this “gift”.  My blood work is perfect. The enlarged nodes that were a problem have retreated and are again normal and I am in a really good place physically, and emotionally. I need to check back with him in a month but after that I suspect I will go back to semiannual blood level checks and all will again be well in the universe.

Also, today is my wife MG’s birthday. I can’t think of a better present than this news. So today, we celebrate a number of things.

chemo parkIt was pouring down rain when we left, so I decided not to run home from treatment today. But, I am getting ready to hop on the indoor trainer and do some riding to give this disease a few more kicks to the head. For good measure.

Thank you for everyone’s continued support throughout this little crunch.  Your thoughts, emails, calls, and comments all mean very much to me and our family.

This is a good day… they are all good days.

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More Be Well Philly Health Hero Challenge Info

Here is the interview and info that Philadelphia Magazine’s Be Well Philly is running on the Health Hero Challenge.

Have a gander.

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Round Three – Advantage BROWN

First let me share the good news. Rounds one and two were so successful that my Doctor gave the green light to administer today’s treatment as a “rapid infusion”. To give you some perspective, it took us close to 5 hours tocomplete round one a couple of weeks ago. Last week’s session finished in 4 hours. And today we emptied that damn Rituxan bag into my blood stream in 1.5 hours.

YES …. One and one half hours. 90 minutes.

We scared the living crap out of that cancer. I think we thrashed it with a fire hose. And I actually think I heard it whimper while I was running up the hill on State Road.

And now the bad new – there isn’t any.

It was a flawless day with MG right there with me. And when I was done she and I walked over to the local track where she continued to walk and I ran in true post-treatment, celebratory ritual style. After which I ran the rest of the way home. (This was about a four mile total trek.) So three treatments are down and three are left to go.

But I need to take a minute and level set with the world. Don’t get me wrong, I am flattered by everyone’s wonderful comments but there are a few things that I am and a few things that I am not.

I am not amazing and I possess no super human powers nor do I wear any super hero garb. I am not the strongest person that you know. In fact I am very much like most people that you know. I don’t live this disease openly to the world and talk about running home from treatment to boast about anything or suggest to be better than anyone. I speak openly about all of it to let others know that they can have a chronic disease yet still live above it in such a way that it doesn’t own or control what they do or who they are.

You can do what I do. Maybe you aren’t a runner. But if you remain active with whatever your hobbies or passions are, trust me; it will help you rise above anything you might be going through.

I’ll take credit for being passionate. I’ll take credit for taking control of my health. I’ll take credit for being a fitness junkie. And I’ll take credit for being a little crazy at times. But I’m just a dude trying to stay one step ahead… and lead by example.

If you are able to relate in some small way or take away a lesson from anything that I say or do, then THAT is wonderful and I applaud and celebrate that with you.

Take control and live above…not just with it.

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Be Well Philly Health Hero Challenge

This is pretty cool… I have been selected as a semi-finalist in Philly Mag’s Be Well Philly Health Hero Challenge.  I was nominated by The Leukemia & Lymphoma Society’s Marketing Manager, Gregory Seitter, for my efforts with Team in Training and LLS.  The Philadelphia Magazine editors then selected the top 16, one of which was me.

The Health Hero Challenge, is a brand new program for Philly Mag’s health and wellness brand, Be Well Philly, in which they are honoring local champions of health and wellness. The goal is to find Philly’s Health Hero, a person who’s making a healthy difference in the community.

The winner will be announced at a celebration in early November and be featured in a future issue of Philadelphia magazine. And the “winner” will receive a very generous donation to their charity of choice. Voting will begin on September 4th and more details will follow soon with specific details on how, where, and how often to vote.

For now, please check out the advance press on their Facebook page.

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Round Two – ME Again

chairJust finished up the second of six rounds of Rituxan. All went very well this morning and we even finished up a little faster than last week. Midway through treatment I received an email from Ethan Zohn with some words of encouragement. He then asked the magic question…. “Are you running home”?

I did the responsible and sensible thing and waited until I was completely finished to even think about the answer to that question. But I felt so good when I was done, I had to make that run. My daughter Jennifer joined me on the run home. It was extremely cool on many levels. I needed that run on many levels.

speedFor me, running home post chemo is one of the most rewarding and gratifying things I can possibly do to regain control. I sometimes feel a little helpless (and bored) sitting in a chemo chair for 6 hours. But when I am unleashed, and feel good enough to run home, all of the momentum and positive energy shifts back into my corner. It feels like I just regained complete control of my disease, my life, and everything in it. I celebrate the run, and trash talk the leukemia.

Thanks to Jennifer and her fiance Lauren for hanging out with me today. Oh yeah and thanks to Speed Racer for providing additional security and safety measures.

F.C.

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"Be the change you wish to see in the world " - Gandhi
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