Carpal Tunnel Take 2

So here’s a funny little story… you might recall that I had carpal tunnel release surgery on my left hand back in December. Well, my right hand apparently has gotten very jealous and wants in on the action. I’m not surprised as I knew both hands had very similar test results. So, long story short – I’m scheduled to have the right hand done on Tuesday 9/26. The pain has been pretty severe for about a week and I have no feeling in my middle finger. I think recovery for this one will be a little quicker because there appears to be a little less nerve damage. The same surgeon, Dr. David Zelouf will do the honors. This will make three surgeries in 9 months (2 carpal tunnel release and 1 knee meniscectomy).

I should be good as new for the New York City marathon.   Stay tuned!

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IM Lake Placid 70.3 Recap

Greetings!

I went a little dark immediately following the Lake Placid race but thought it was appropriate to share a quick update of my race with you. First of all – I’m ok. But I did have a disappointing day. The cold water temps and even colder air temps at the start presented a lot of problems for me with both muscle spasms in the low back and presented the perfect formula to trigger my condition induced asthma. That asthma thing doesn’t present itself often but when it does, it can be very problematic with breathing. Feeling those symptoms in the water forced me to stop often to try and breathe. Translation = missed the swim cut off by 2 minutes.

As I exited the water to a road block of orange cones and hearing the words “I’m sorry, your day ends here”, I was in a pretty bad emotional place. I made my way to the warming tent for a little bit not because I was cold, but more because I needed a place to privately “lose my stuff” before regrouping with my family who were eagerly awaiting my swim finish.

14498876-BE14-44F5-94CA-CBFD44717266Even after 30 years of racing, these things still sting. HOWEVER….., we all know that stuff happens. And the stuff doesn’t define us as much as our reaction to it. The rest of the day and next several days proved to be very memorable as we thoroughly enjoyed Lake Placid with our kids and grand kids. Including a hike of Mt. Jo and a visit to a couple of breweries. We created some more amazing memories in the gorgeous town of LP. And for that, I am very grateful.

If any of your are racing IMAC 70.3 this weekend, I will be running the 1st run aid station coming out of transition. I’ll wear a Team IMF cap, so yell hi on your way through. Next up for me is NYC marathon.

It was a pleasure connecting with some of you and an honor to represent the Ironman Foundation. Congratulations to all finishers. THANK YOU to all volunteers and supporters, and Peace to all.

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Happy Blood Cancer Awareness Month!

September is blood cancer awareness month. Blood cancers are cancers of the blood, bone marrow or lymph nodes that affect normal blood cell production or function.

Today, nearly 1.3 million people in the United States are living with, or are in remission from, leukemia, lymphoma or myeloma.

Blood cancer can affect anyone, at any time. There is no way to prevent or screen for most blood cancers, so we are focused on finding cures. Visit lls.org to learn how you can help.

Blood Cancer Awareness

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FDA Approves Immunotherapy for Blood Cancer Patients

Today heralds a new era in cancer treatment with the U.S. Food and Drug Administration (FDA) approval of a new, cutting-edge gene therapy that reprograms a patient’s immune system to find and kill cancer cells. This highly personalized therapy known as Kymriah (previously CTL019 or tisagenlecleucel-T) signifies the promise of CAR (chimeric antigen receptor) T-cell immunotherapy, an approach that The Leukemia & Lymphoma Society (LLS) recognized early on held great promise for blood cancer patients.

In fact, LLS invested more than $20 million in research for this groundbreaking advance over the past two decades through multiple grants awarded to Carl June, M.D., and his team at the University of Pennsylvania and Children’s Hospital of Philadelphia, who pioneered this treatment. Novartis licensed the therapy from Penn in 2016.

LLS has also invested an additional $20 million to support CAR-T advances at other institutions, including Kite Pharma’s KTE-C19 (Axi-cel), also currently under review by the FDA for patients with lymphoma. LLS partnered with Kite Pharma to support its Phase 3 clinical trial since 2015 through its Therapy Acceleration Program® (TAP).

After receiving a unanimous recommendation from a review panel in July, the FDA approved Kymriah today for the treatment of pediatric and young adults 25 years of age and younger with relapsed or refractory B-cell acute lymphoblastic leukemia (ALL). More than 3,100 children and adolescents per year are diagnosed with ALL. The overall survival for ALL in children exceeds 85 percent, with these children undergoing between two and a half to three years of intense chemotherapy treatments. However, even patients who achieve an initial response to standard therapy will eventually relapse, and the prognosis is extremely poor for these patients. This CAR-T therapy is designed for those patients who have not responded to multiple previous treatments or are unable to remain in remission from their cancer.

“This is truly an exciting new day for cancer patients,” said Louis J. DeGennaro, Ph.D., LLS president and chief executive officer. “LLS recognized the promise of this innovative approach to treatment nearly 20 years ago. We first began to see remarkable outcomes for some of these patients in 2010 leading us to increase our funding of CAR-T therapy by supporting more than 10 major laboratories developing this method. We at LLS are extremely gratified to witness this lifesaving treatment approved so it is accessible to even more patients who desperately need new options.”

The FDA’s approval of Kymriah is based on positive data from a clinical trial showing that 83 percent of the patients treated achieved a complete response rate.

LLS is now funding the next generation of CAR-T therapy, where we anticipate the method will be useful in many different blood cancers, and perhaps even other major tumors that are difficult to treat such as brain, lung and colon cancer.

About The Leukemia & Lymphoma Society

The Leukemia & Lymphoma Society® (LLS) is the world’s largest voluntary health agency dedicated to blood cancer. The LLS mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world, provides free information and support services, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care.

Founded in 1949 and headquartered in Rye Brook, NY, LLS has chapters throughout the United States and Canada. To learn more, visit www.LLS.org. Patients should contact the Information Resource Center at (800) 955-4572, Monday through Friday, 9 a.m. to 9 p.m. ET.

For additional information visit lls.org/lls-newsnetwork

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Tommy John Ad Graphic

I recently helped out Tommy John by contributing to one of their ad graphics. Check out my “expert” tip below. And just who or what is Tommy John besides a retired baseball pitcher who has an elbow surgery named after him? Glad you asked. Visit tommyjohn.com for more.

tommyjohn

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HOKA One Test Run

I just recently took my new pair of HOKA One’s out for a test spin. I saw HOKA burst onto the running and triathlon scenes a couple of years ago and my curiosity was piqued. While historically I have been somewhat a moderate to minimalist to a neutral shoe wearer, I had to check these out. It was actually my meniscus surgery earlier this year that prompted the move.

fullsizeoutput_424I’m happy to say that my first run was pretty amazing and I literally felt like I was running effortlessly downhill. If they continue to feel good this week, I will race in them in Lake Placid. And if that goes well, I’ll wear them in my fall marathons. If THEY go well, I’ll be hooked. Worth checking out HERE.

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Good Day in Wildwood

wildwood run inWeather conditions were perfect as over a thousand athletes took to the beaches, roads, and boardwalk for the 14th running of the Tri the Wildwoods Triathlon produced by DelMoSports. This event had something for everyone offering a sprint and Olympic distance triathlon and aquabike, and even a 5K run and a kid’s splash and dash. I opted to race the aquabike so I could spare my knees and ankles from the risk of the soft sand beach run. Being so close to Lake Placid, I want to be safe and arrive at the start line injury free.

wildwood metalMy swim was fair given that it was an ocean swim. And although we did swim with the current, the swells were a little big for my liking. I also had some goggles issues which held me up a little but all is fair in love, war, and triathlon. Even so, I was in and out without issue and then got to enjoy one of the best bike courses in the region. The bike was fast with just enough wrinkles to keep your muscles from getting bored. All in all, it was a GOOD day! Thanks to all the staff and volunteers who worked so hard.

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Tri the Wildwoods Triathlon

Up this weekend for me is the Tri the Wildwoods Triathlon in Wildwood New Jersey on Saturday. The race offers a few event options such as aquabike and triathlon in both sprint and Olympic distances As well as a 5k and a kids splash and dash race.

I opted for the Olympic aquabike for a couple of reasons. I wanted the longer open water swim in preparation for the Lake Placid 70.3 But the triathlon consists of a beach run and I did not want to risk anything funky happening to knees and ankles in that soft sand. The weather should be gorgeous.

This event is produced by DelMoSports who put on a number of top shelf quality events in the region. Check them out at www.delmosports.com. I’ll post an update next week!

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New Brand Ambassador

I’m happy to announce that I was just offered a Brand Ambassadorship role with Pacific Health Labs, the makers of Accelerade, Endurox, and other awesome endurance  sports fuel. Stay tuned for cool things coming out of this relationship!

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Weekly Fit Tips

Fit and Fab(ric)

Fit and fabric are important keys to your workout success. You’d be surprised what a difference wearing the right clothing will make. Choose something that has a breathable moisture wicking fabric and fits you properly. Choose function over style. You will feel better and if you feel better, and that can only lead to better performance.

Just Be YOU

We all develop and progress at different levels. Don’t let the success of others lessen the significance of your own success. Measure your progress by your standards. Celebrate how far you’ve progressed without worrying about how far you need to go

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