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Category Archives: health & fitness
2020 Calendar
2020 calendar of events is still very much a work in progress. But here are a few things!
Thanks Peloton & Megan
A friend of our daughters submitted our story to Peloton for their Comeback promotion and as good fortune would have it, we won a Peloton bike with all the trimmings!! How very generous of Peloton and how very thoughtful of the friend who was so moved by our story that she took the time to [...]
Three Ways to Help
For over 30 years I’ve been tying together endurance sports and charitable giving. 2019 is affording me several opportunities to do more of the same. The links below will take you to the fundraising events I’m currently registered for and the corresponding charities for each event. Any help that you can give would be immensely [...]
Also posted in cancer, charity, leukemia & lymphoma society, survivor Tagged autism speaks, big climb philly, legacy of hope, leukemia & lymphoma society, love run, tcs nyc marathon Comments closed
Speaking Engagements
As I continue to add 2019 races, events, and speaking engagements, I thought I would post this for reference. Click the link below and if I can be of any assistance to you or your organization, don’t hesitate to raise your hand!
SteveBrownSpeakerNewBio
Also posted in cancer, motivation, survivor Tagged keynote speaker, motivational speaker, speaker Comments closed
The Power of Choice
Last night I was asked to say a few words at a wonderful community Prayer service. Below was the message I delivered .
The Power of Choice
When we first started these prayer services many months ago, as we all know, they were for my brother in law, Lefty Snyder. The intentions quickly grew to include me, [...]
Also posted in cancer, motivation Tagged brain aneurysm, chronic lymphocytic leukemia Comments closed
Dear Extended Team in Training Family
I wanted to let you all know that after a fair amount of thought and soul searching, I’ve made the decision to step down as the Eastern Pennsylvania triathlon coach. Over the last 12 and a half years I’ve had the honor and privilege of coaching some of the most amazing people on this planet. [...]
Also posted in coaching Tagged leukemia & lymphoma society, Lls, team in training, tnt Comments closed
Dance with Me
Quick update for those keeping score at home. Today is day 13 on my new daily chemo ibrutinib and I continue to see amazing results with virtually no side effects. I also had my 2 week oncolodoc check in today and he was equally pleased. My blood work is responding exactly as it’s supposed to. [...]
Also posted in cancer Tagged blood cancer, chronic lymphocytic leukemia, cll, janssen pharmaceuticals, johnson & johnson, leukemia & lymphoma society, Lls, pharmacyclics, relentless, remission, survivor Comments closed
Hope, Belief, Trust, and Science
For over 12 years I’ve lived with chronic lymphocytic leukemia. There is no cure for this chronic blood cancer today. When things go well, you strive to manage the disease and treat it with conventional therapies when symptoms become problematic. Remission is the perpetual goal. And for over 12 years, we’ve done just that. With [...]
Also posted in cancer, motivation Tagged blood cancer, chronic lymphocytic leukemia, cll, ibrutinib, imbruvica, janssen pharmaceuticals, johnson & johnson, pharmacyclics, remission, snow companies Comments closed
A New Chapter
For 12 years I’ve managed my CLL by reacting to flare ups and relapses with periodic chemo treatments using drugs like Bendeka, Fludara, and Rituxan, and megadoses of steroids like Decadron, Prednidone. That accounted for 54 rounds of toxic chemo and God only knows how many steroid cycles over those 12 years.
I experienced another flare [...]
Also posted in cancer, leukemia & lymphoma society Tagged blood cancer, chronic lymphocytic leukemia, cll, ibrutinib, imbruvica, janssen pharmaceuticals, johnson & johnson, pharmacyclics, snow companies Comments closed
Living with CLL – WebMD