Monthly Archives: September 2018

Hope, Belief, Trust, and Science

By Steve | Published: September 28, 2018
For over 12 years I’ve lived with chronic lymphocytic leukemia. There  is no cure for this chronic blood cancer today. When things go well, you strive to manage the disease and treat it with conventional therapies when symptoms become problematic. Remission is the perpetual goal. And for over 12 years, we’ve done just that. With [...]
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Day 5 with Ibrutinib

By Steve | Published: September 26, 2018
Well, I am most ecstatic to give this update on what is now day 5 of my new chemo drug, Ibrutinib. While proven to be quite effective, there are a number of possible side effects associated with this drug. The keyword for me so far is “possible” because I have felt little to zero side [...]
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A New Chapter

By Steve | Published: September 22, 2018
For 12 years I’ve managed my CLL by reacting to flare ups and relapses with periodic chemo treatments using drugs like Bendeka, Fludara, and Rituxan, and megadoses of steroids like Decadron, Prednidone. That accounted for 54 rounds of toxic chemo and God only knows how many steroid cycles over those 12 years. I experienced another flare [...]
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September Updates!

By Steve | Published: September 19, 2018
Many apologies for dropping the ball on blog updates. I have been extremely active on social media and if you’ve been following along you know that a lot has been happening in Camp RemissionMan. I promise to get back in the habit of posting ad updating to all platforms going forward! There is so much [...]
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"Be the change you wish to see in the world " - Gandhi
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